I was dx with SCC in 2003 on my son's fourth birthday. I have had surgeries, radiation implants, HBO, more biopsies, radiation burns and now more complications from the radiation treatments. I have seen several doctors and have changed ENT specialists but all to no avail. I am still miserable and in ALOT of pain everyday but no one seems to have any answers or solutions and they only thing the doctors seem to know how to do is reccomend costly procedures and biopsies that do not help. All the biopsies are normal and because I don't have cancer they have NO IDEA what to do to make me better. And as of today I feel like I am going to have to live in pain and be miserable for the rest of my life while the doctors keep guessing. I am very grateful that I don't have cancer but I also want my life back. I have four children and a wonderful husband and I want to be the mom and wife they deserve but I can't because I am miserable and spend too much going to doctors who aren't able to help and won't listen to me. Getting pain medicine is a huge deal with every doctor, I'm not an addict, I am a cancer survivor who is trying my best to deal with extreme pain and still have something that resembles a life. Why is it so hard for them to understand that? Don't I have a right to live without pain or at least be able to manage my pain until they figure out how to fix it? I have a hole in my gums exposing jawbone because part of the bone was dead. Three weeks ago the oral surgeon removed part(2in.) of the dead bone and wants to wait and see if it will heal without any further intervention but nothing is getting any better and he seems to be sticking firmly to the "wait and see" treatment plan. Meanwhile, I have trouble talking and eating and I am losing weight quickly(almost down to 100 lbs.) Why can't I get any answers? Can anybody help me?