|   Patient Advocate (1000+ posts) 
 Joined:  May 2009 Posts: 1,412 |  Sue, I hope you enjoy your retreat.I also wanted to tell you that your pain sounds like mine.  It has been going on for awhile, but has lessoned now.  My ENT said that it was probably neurological.  I also have a new lumo on my tongue, same side as last time, and the pains on that side began about the same time the lump showed up.  Anyway, I will keep you in my thoughts and prayers as we walk down this path.  I am supposed to be getting a scope on Friday, but I think I would rather have an MRI.  We will see what happens.
   Angelia
 31 at Dx.
 DX: 4/30/09, 10/21/09 SCC on floor of mouth,
 T1NOMO, T2N1M0
 TX: 39 IMRT, 8 cisplatin 11/30/09
 PET/CT: 11/03/09: Lymph node involvement
 PEG/PORT: 11/09
 TX end: 02/01/10
 PET Scan: 04/05/10 clear
 PEG Out: 06/21/10
 Biopsy: 12/23/10: fibrosis
 HBO: 01/04/11 - ORN
 Baby girl born 11-30-12
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