Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Sue, I hope you enjoy your retreat. I also wanted to tell you that your pain sounds like mine. It has been going on for awhile, but has lessoned now. My ENT said that it was probably neurological. I also have a new lumo on my tongue, same side as last time, and the pains on that side began about the same time the lump showed up. Anyway, I will keep you in my thoughts and prayers as we walk down this path. I am supposed to be getting a scope on Friday, but I think I would rather have an MRI. We will see what happens.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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