Suzanne

I echo Brian and David's concern and wonder if you are a victim of typical medical condescension when a patient pushes back. they should have some tissue samples frozen that they can test for HPV otherwise its a SWAG (simple wild ass guess). I am curious as to what in a pathology report would indicate HPV.
I know how frustrating it is to have them refuse to do the HPV tests but that's because most institutions are not set up to do it. I only got my recent surgery tissue tested because my CCC finally made it "routine" for all head and neck cancers, before that they would not make an exception for me. (I was negative for HPV - bad news actually from what I read)