Hi Erica and welcome....sorry we didn't get to you sooner!! I actually went to UPenn and didn't have a good experience. Also, saw the head surgeon (supposed to be the best at Penn) The surgeon I saw did 3 partial glossectomies (removal of some tongue) and by the 3rd I said why do you think this is happening? He said "I don't know" So I now go to Fox Chase Cancer Center. Not to say changing docs is the best thing to do but I would start looking for a 2nd or 3rd opinion. Especially if they current doc doesn't know what to do.