Just to reaffirm some of the points here:
I got through the first time without a PEG and launched another round of the PEG wars here on the board with my staunch opposition to it so believe me when I say that you will spare yourself a lot of grief if you get a PEG.
Insist they test your tumor or biopsy for HPV, it will buy you peace of mind as so far no one on this 6000 plus board who tested positive for HPV has had a recurrence and posted about it. Only those of us without HPV seem to get BOT cancer a second time.
EAT, EAT, EAT now. Everyone loses too much weight, even with a PEG.
Finally, for the majority the Treatment does the trick and they do not get it back and go on to live the "new normal". So good luck and best wishes
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13