Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Kerri, welcome to our home, and actually to me this does feel like my home. Everyone here I consider family. You are having the feelings most have and are having the same questions go thru you mind. I had the same procedures you did 2 yeras ago on the 3rd of August 2007. My tongue still hurts a lot , but I also had to have my teeth removed and radiastion seed implants put in my tongue and put into an induced coma as I was radioactive for a few days. I had the radiation and chemo both and was treated very agressively these before the implants. Yes your mouth will hurt and you will have worries, but it's best to do your best to ignore these things unless it really gets bad and you actually can see something or feel it. Imagination runs rampant with OC. It's our life and we want to keep it. Good luck and be brave.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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