My mom never had a PEG tube but she did have the nasogastric tube for 8 days while she was in the hospital with the first surgery. She hated it. When the food went in it burned her like crazy and she made her doctor promise on the second surgery that he would not use the feeding tube again and he didn't. She had a trache and lost 3/4 of her tongue and a large portion of her mouth but the thing she hated most was that feeding tube in her nose. He never once mentioned using a PEG and my mom lost about 40 pounds and now 8 months post radiation has not gained a pound back. She lost a lot muscle and has a lot of loose skin and she looks like a completely different person than before radiation. I think they should have given her the PEG tube as a lot of days she never ate anything and I feel that because of the poor nutrition she took longer to heal than most....

Love ya Minnie....don't feel uncomfortable...your wonderful!!!!!!!!!!!

Dani


Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate