I didn't see your other responses before, but glad you're getting a peg tube and port. I have them too, and both come in handy. You'll get instructions about mainaining swallowing function with food/liquids for as long as possible, and even dry swallowing if it becomes too difficult.

Although it's no indication of anyone else's treatment response, but from just 5 days of TPF IC, no radiation, it killed all my cancer in the tonsil, and 2 lymph nodes, plus other areas of cancer suspicion, to the point of being unpalatable and undetectable by PET/CT scan 8 months later. Before I left the hospital, they had advised to make sure I come back in 21 days for further treatment since many think they don't have to from the good response. I wish the same for you.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs