 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Hi Hellion,
Our MO who is in charge of drug development at our hospital says, 'there is always something.' She refers, of course to trial drugs. If John's trial drug doesn't work for him this time, the next trial she has in mind requires the patient to have had three lines of treatment-- three previous chemo treatments. So john does not even qualify for that unless the present trial doesn't work for him. One window closes but another opens, you see.
The most important thing I feel is to keep up your weight and stay in reasonably good shape for the next trial. Please don't let things get you down too much.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| 
