Dear Hellion,

I hope that your doctor and you are on the right track in thinking that the increased CK levels are a good thing and that it means the tumor is being taken down quickly. I pray that your body may continue to handle this process, so this tumor can be disposed of it in the toilet, where it belongs!

I understand that you're looking for some smooth sailing, as I like to call it. You deserve it! In the wake of all is going on in your life, I hope that you are feeling reasonably well. I wish, I hope, and I pray that this will eradicate your cancer. Here's to smooth sailing and good health in your future! Keep up the fight and remember that we are here standing beside you and behind you every step of the way.

Love and hope in OCF,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!