 Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Hi Samantha and welcome. So sorry you have to be here but so happy that you found this site and Christine, she's the best! It breaks my heart to hear how young you are and to be battling this and all you have been through. It sounds through your post that you have a great, positive attitude. You are fortunate that you are being treated at the best of the best - Johns Hopkins. Good luck with your upcoming surgery and I will definitely keep you in my prayers. Hugs
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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