Brian, if I saw me on this board my response would be "whoa, calm down, You don't know anything yet. Get your facts and then figure out how to respond ."
It also hit me when someone suggested that I add a signature line. I looked at others and it struck me my info would have to say "caregiver to someone who was dx with no tests or info."
What was very important to me here though was to get validation that to be told you have CA with very little other info was...um...unusual...
We are now researching Sloan and just reading their website makes me calmer than talking to this Dr.did.
This board was my anti Dr. reminded me what I know when I'm sane.That's invaluable and I thank everyone.