Amy

Just wanted to wish you the best. I can't imagine suffering the way you have at so young an age. You did bring a smile to my tired old face reading your carebridge journal entry about the feeding tube and the nurses not understanding that you did not need the extra hassle and indignity of syringing out your stomach contents before putting it back and then using the feeding bag. I loved your remarks about nobody making the other patients puke up their prior Cheerios. Your sense of humor is so awesome in light of all that has happened to you. I am only 8 months on the feeding tube and hate it. For what it is worth, I think you have made all the right decisions here - hard choices though they were. Words don't really cut it in situations like this, so I won't belabor it, but you are truly an inspiration.
charm