Amy, I am sending you a HUGE hug. I am so, so sorry to hear your latest update. Push for all the pain meds you need. In this day and age NO ONE should be in uncontrollable pain. I wish I how some words of wisdom but I don't. I will continue to keep you in my prayers. Only you know what is the right decision for you. God Bless. Wanda

Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2