 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Amy...
I am so terribly sorry that you have a recurrance. It really stinks to say the least.
I also have severe trismus. Even without teeth I cant open my mouth wide enough to get a complete exam. Where exactly is the spot? What did the doc say about the surgery? This sounds like the whirlwind that I went thru with my 2nd round. Within 2 weeks of finding the spot I was having surgery to remove it.
DONT YOU DARE say you dont know whats the point!!!!! I feel so sad when you talk like that. We all depend on each other to get thru this. It can be done, please dont let this awful disease beat you down. Please vent all you want here we will support you. We are here no matter what your decision would be.
Wishing you the best possible outcome to this.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
