#92614 03-26-2009 07:59 AM | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Many of us were not on this forum nor even knew of OCF when Rosie made here famous but ill fated pitch for $10. That contest had been closed for over a month before I joined all those posts ago. IMHO it wasn't Rosie's approach nor plea, it was the stupid set up - requiring you to get a "badge" and then you had to do American Idol tactics of multiple enteries under different email addresses and enlist others in a complex hassle.
So, here is a fast, simple, no hassle way to show your support for OCF. GO TO THE OCF FOUNDATION LINK AT THE TOP LEFT OF THIS BOARD, AND BECOME A MEMBER (PRICES START AS LITTLE AS $50 TO JOIN AS A MEMBER WITH ONLY A $25 RENEWAL FEE).
I am retired, and have massive medical bills even with great insurance due to deductibles and a $6,000 requirement before catastrophic kicks in. Not a penny of my Dental bills to fix the radiation damage is paid for by insurance and I have tried. Their policy is straightforward - unless I can find an oral surgeon who does root canals and crowns and is willing to falsely bill BC/BS -I am SOL. My retirement 401K that I need to draw down to pay the bills looks more like a 101K. I have a son in college and am the sole breadwinner in our family (my choice and insistence) So I know how hard it is. But I just got my tax refund so I immediately joined. Trust me every $50 helps. You can join as a more expensive member for $100, $200,or $250 - JUST JOIN
I am going to steal PBS' soapbox here and say that if you are reading this, and you want to read more posts, then you need to show your support for OCF. Unless you are a curmudgeon like myself who has to wait a full year to see if he can stand an Internet board or deal with the personalities of the frequent posters (I ditch almost all of them within 9 months for too much flaming, too little flaming, too much cheer, too little cheer, too much moderator involvement, too little moderator involvement) Those of you who follow my posts can see where this is going ;)Like in Goldlocks: OCF is JUST RIGHT on all counts
Just can't spare that Ulysses S. Grant? CLICK ON DONATIONS AND GIVE $30, OR 20 OR $15 OR Rosie's $10 David probably saved you way more than that with his tax tips and help.
I push for membership because when big buck donors evaluate causes they want to know not only donations but membership numbers. I seriously doubt OCF has 5941 paying members but that is how many of us are members of the board, Brian could make it mandatory to pay to play - he doesn't . C;mon Uncle Sam's return of confiscated money is a time to rejoice. Spend a tiny portion on OCF. You will feel better. I do
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | This is a good idea Charm....I'm with you. I will be donating soon....if we didn't have this site I don't know what I would do. Thanks for making this a point.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Fax or e me your "stuff" and I'll prepare and e file your U.S. and state returns for free if it includes a refund donation to the OCF.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | That is really "above and beyond" the call of duty David, you are one of a kind.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | For David, CPA means Cancer Patient Angel
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Talk is cheap...I need some returns to do. If you can't get your stuff together before the 15th, I'll file an extension for you and all I need is your and your spouses' name, address and SS#.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Very nice of you to do this David. Hope some people take advantage of your generosity.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | I made a donation last week and will continue do so every month. Having this site means so much to me. The help I have received here is priceless. If I can be of some help, I will!!!
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Suzanne You go above and beyond with that donation program But then you do above and beyond in life too Everybody else Only about 6 weeks left before all the refunds have been sent out so you won't be seeing this sticky post for much longer Seriously, with the TEA PARTIES all over Fox news, never a better time to share some of that refund with OCF. If there were any real economic justice, OCF would be getting some Stimulus money. But there's not, just us. So if you just filed, please consider making a donation or joining as ever Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Charm - You're a master salesman - I couldn't resist your plea, even tho we DIDN'T get a refund and had to pay out even more (perhaps I should have had David do our taxes!), we donated to OCF anyway. It helps so very many people and is a genuinely worthy cause. Thank you.
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
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