Print Thread
#117300 05-29-2010 08:00 PM
Joined: May 2010
Posts: 3
Member
OP Offline
Member

Joined: May 2010
Posts: 3

Hello--
My dad has a lesion on his tongue that has recently been biopsed and described as a "pre-malignant lesion." He has an appt with an ENT to discuss treatment options next week.

I've been trying to do research to prepare for this appt but haven't found much material relating to pre-malignancies in oral cancer. We're scared!

Is it typical that such a lesion would be removed? How difficult is it to have a tongue lesion removed? I know from what I've read here so far that this happens all the time... but this is a new world for us. Any advice much appreciated. We live in Minneapolis. Thank you--gwen


Joined: Mar 2002
Posts: 4,912
Likes: 53
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 53
Pre malignant is just that. Not yet cancer. If it is small, it can be surgically removed. There are all grades of premalignant lesions, of many different types. Many that are low grade, only 10% of them, even untreated, never progress to malignancy. The path report should use the word dysplasia and high or low grade if it is moving from low to high grade, but even then, only 25% of all dysplasias move on to full malignancy. That will tell you a lot. Only a few are high grade dysplasia, those are serious.

If you are seeing an ENT, he is trained as a surgeon and he is going to want to do surgery. Please ask him for a copy of the pathology report and the people here can help you understand what this is - high risk, low risk - etc. Also if you wish to discuss this further, it would be helpful to know what risk factors your father might have, such as tobacco use.

For now, try to be calm, feel great that this was caught early whatever it turns out to be, as that means low risk of long term problems.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I guess this is the same as my Esophagus after 1/3 of my stomache was wrapped around it. I't called Barretts Esophagus and means it is precancerous and can turn to cancer but I get scoped quite often to keep an eye on it. It is biopsied everytime it is scoped. This has been going on since 1996 and I am doing fine even with the inflamation and soreness.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: May 2010
Posts: 3
Member
OP Offline
Member

Joined: May 2010
Posts: 3

Thanks, Brian. I very much appreciate this information. My father's appointment is tomorrow, so we'll have more information then but the initial biopsy report said that it was a "pre-malignant hyper keratosis with mild epithelial dysplasia."

My father is 76 and has never smoked. We'll keep our fingers crossed that this is a situation that can be monitored but maybe doesn't require substantial action at present... My mother has kidney cancer and we've learned a lot about treatments that severely impair quality of life. We've also learned the importance of being educated and proactive in your own care -- so I am all the more grateful to have found this forum.

Thank you.
gwen


Joined: Mar 2002
Posts: 4,912
Likes: 53
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 53
hyperkeratosis makes me think that it is rubbing against something rough ( chronically ) in the same area. Check for old restorations or something that is causing the hyperkertosis. If you find something like that, it can be polished down or replaced. If this is superficial like it sounds, it can likely just be lasered off. Many dental offices will do this for you, and are competent to do so.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: May 2010
Posts: 3
Member
OP Offline
Member

Joined: May 2010
Posts: 3

My dad had his doctor's appointment yesterday and the ENT felt that the dysplasia was mild enough that it was a "reasonable" course of action to just watch it --and only intervene with surgery or a laser procedure if it gets worse. He suggested a follow up appointment in four months.

We were very relieved by this, and it seems like a sound plan to us. Does it seem reasonable to all of you experts?

Many thanks for your kind help.
Gwen


Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndlors01, Kval, iMarc845, amndcllns01, Jina
13,107 Registered Users
Forum Statistics
Forums23
Topics18,172
Posts196,938
Members13,107
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5