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#202063 08-28-2024 08:17 AM
Joined: Aug 2024
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Joined: Aug 2024
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Hello! My husband was diagnosed in April with Stage 1 HPV+ SCC Base of Tongue Cancer with 2 lymph nodes involved. He underwent 35 Radiation sessions, and 3 cycles of chemotherapy. He finished at the end of July 2024. He is 63 and retired. He was also diagnosed with heart failure at the same time when the EchoCardiogram was performed as pre-testing for chemotherapy. He began taking Entresto for abnormal left ejection fraction. It's been very hard these past few months, but I am interested in hearing about how everyone is coping post treatment.

Joined: Aug 2020
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Joined: Aug 2020
Posts: 156
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Hello Chickenlady,

I am so sorry for what you and your husband are going through. Thank you for reaching out here. Recovery is different for everyone. Four years ago I was diagnosed with stage 4 SCC on my tongue and went through surgery (removed and rebuilt half my tongue, trache tube for breathing, feeding tube) followed by radiation.

I found recovery from surgery to be faster than that from radiation. I learned to judge my radiation recovery in weeks/months rather than days/weeks. Keeping a journal was quite helpful. If I got frustrated, i could go back and read how life was just a few weeks ago.

Coupling this cancer coaster (felt like a roller coaster of emotions to me) with heart problems - ugh - hard! I kept a spreadsheet of all my key recovery activities - from food, to medicine, to exercises, to caloric intake, yoga, mindfulness, walks, time with loved ones (make myself call or email a friend or family), that love went a long way, time with God, etc. If i hit 90%+ for the day, i would treat myself to a favorite snack or something.

I will share that eventually I was able to speak to random people on the phone and be understood, eat at a restaurant, work again, jog again, surf again, etc. Each step was a small but important piece of my life back. One week, a half mile walk was my best, a couple months later i could jog a mile, etc. It will never be the same (have a lisp, scars, tight neck muscles, pain, etc) but I can also share that my life feels more meaningful today, I am more grateful, more present, etc.

Let us know particulars - hows drinking? eating? speech? social activity? medical team support?


OC thriver, Tongue Stage IV, diag 3/12/20, surg 4/1/20, RT compltd 7/8/20

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