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severe dysplasia #197752
01-04-2019 05:55 PM
01-04-2019 05:55 PM
Joined: Jan 2019
Posts: 1
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Tricia411 Offline OP
Member
Tricia411  Offline OP
Member
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Joined: Jan 2019
Posts: 1
I had my second tongue surgery yesterday. This time they took a whole lot more out.

I can't eat (just boost) can't speak and I'm in a lot of pain. I'm so swollen I can barely get the pain meds down and they barely make a dent in the pain.

I'm drooling 24/7. I wake up choking on my own saliva. I'm running a fever, of about 99.6, down from 100 last night. This is hell!

I'm hoping some others can share their experiences. How long foes the swelling drooling and fever last?

Re: severe dysplasia [Re: Tricia411] #197833
01-24-2019 03:11 PM
01-24-2019 03:11 PM
Joined: Apr 2017
Posts: 61
Valdosta,Ga.,USA
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WendyinGa Offline
Supporting Member (50+ posts)
WendyinGa  Offline
Supporting Member (50+ posts)
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Joined: Apr 2017
Posts: 61
Valdosta,Ga.,USA
I feel you. I went through a similar journey. The drooling can last a couple of weeks maybe more ...depends really on your healing process. The pain for me did not end so soon, as I had to get more surgery after my ENT got out of his league. Be careful with pain meds during this crucial time...you are going to get severely constipated using pain meds...and with not eating properly, especially boost and ensures, that contain a lot of protein, you will get clogged quick. I was not informed about this when I went though it, and ended up hospitalized. If you do take the heavier pain meds make sure to use your stool softeners, and flush with plenty of water or liquids other than the protein packed ones. Also if you are in severe pain, do not be silent...you can continue to tell the docs that you are not feeling any relief. They will switch to something different...be careful, as some docs are to ready to give over the big stuff like, Fentanyl. Super addictive and not something you want to get hooked on, I had to be weened off it for about a week in the hospital. The saliva ----I bought BabySmile S-502 Nasal Aspirator, to help with the excess saliva as mine lasted a while. I used talking apps on my phone, and wrote on notepads. It's going to get better. Patience---I know it is hard. If not eating becomes a problem, you may want to consider a feeding tube. I didnt get one until much later, and I wish I didnt wait...I lost over a hundred pounds. The feeding tube took the trauma of eating out of the picture.


04/21/17 Biopsy at ENT
04/25/17 Biopsy result SCC on left side tongue
04/27/17 CT Scans--shows shallow tumor
05/02/17 Pre-op
05/03/17 Surgery to remove tumor
05/08/17 Cancer still present
05/10/17 2nd surgery-
06/05/17 PET on 6th, RADS start on 06/20/17
07/11/17 Halfway point!
08/01/17 Last treatment
11/1/17 Cancer is back
11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft.

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