#9987 03-21-2007 02:43 PM | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Aug 2006 Posts: 294 | ptdsmurr,
I am also a patient at Emory where I was diagnosed with base of tongue cancer last April. I have completed treatment and am currently in the quarterly monitoring stage with good reports so far. I had never had any experience with cancer treatment before but from my experience I don't think you could do better than Emory in GA. I don't see any reference as to how far away you are from Atlanta but I would certainly consider Emory if at all feasible in the case of your husband.
Bill D.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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#9988 03-21-2007 02:59 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Dear ptds, I know you are really devastated about this. It's a really hard diagnosis to digest and figure out how to deal with, emotionally as well as the logistics of rearranging your life during his upcoming treatments. Just want to share a couple of things- you DO need to be at the best treatment center possible- our radiation center was a 5 hr. round trip drive every day for 30 days- not my choice, but my husband, who was the patient and a pretty stubborn man-wanted to sleep in his own bed every night-so that's what we did. Before his treatment started, we also "cleared the decks" of any other responsibilities we could, and I made a list of what I would be responsible for in our personal lives so as not to be too swamped. I also asked for specific help from family and friends when his treatment started-that is essential- Please tell us what we can do to help you- I will gladly talk to you by phone, as will others here, if you feel like talking, or you can call me. Please take advantage of the resourses here. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#9989 03-22-2007 12:44 AM | Joined: Mar 2006 Posts: 8 Member | | OP Member
Joined: Mar 2006 Posts: 8 | Dr Chen did his first surgery, she's going to do the second surgery on 4/11/07.We are going to see
Dr Losken next week for a consultion. He's a plastic surgeon. He's going to do the reconstruction at the same time. | | |
#9990 03-22-2007 01:53 AM | Joined: Nov 2006 Posts: 167 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2006 Posts: 167 Likes: 1 | PTD, the following number is for Social Services at Emory. Please call them and see what kind of help they can offer you. The number is 404-712-4366. I hope this helps. What part of Ga. are you from? I am up around Lake Lanier and love it. You also have a GREAT ENT. Dr. Chen is one of the finest people one could meet. She did my surgery and you can't even tell.
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07  | | |
#9991 03-22-2007 05:00 AM | Joined: Mar 2006 Posts: 8 Member | | OP Member
Joined: Mar 2006 Posts: 8 | We live in West Point, Ga | | |
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