| | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 |
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | I am the world's worst typist. Is there a way to edit one's review? I'm not about to do this a third time and I'm on vacation starting tomorrow am.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Eileen
Congratulations on getting your review posted successfully at last. Enjoy your vacation
Everyone else
Okay 45 reviews still leaves us 20 behind the current leader in our category. Only one week left so please this weekend, Vote for OCF. I already see some of you who prefer to read have taken the plunge. For those who have not, please consider this message from Great Non Profits:
[quote]Plus everyone who writes a review is eligible to win fun wellness prizes such as a free copy of Everything Changes: The Insider's Guide to Cancer in Your 20s and 30s by Kairol Rosenthal, free milk for a year from Organic Valley Farms, delicious baked goods from Dancing Deer Baking Co., spa packages from Osmosis Day Spa and Sanctuary, hotel stays from Joie de Vivre Hotels, and more![/quote]
So it's like a free lottery ticket! C'mon, this is a very easy way to support OCF. We do not even have one percent participation. Can 99% of you not be bothered? Please don't think you have to write an opus. You can fill this out with simple sentences like: I have found OCF to be very helpful to me - Just that, nothing more. My understanding of the rules is that VOLUME not eloquence nor length of replies is what it takes to win. So 100 one sentence reviews would help OCF more than 1 one hundred sentence review. One little sentence for each question, rate OCF 5 star, hit cancer fighter drop down, enter email and click, is it too much to ask? Please reconsider if you have not voted
charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Done and taking it to 48 !!
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Charm,
I don't know anyone can turn down your pleas.
It can be done!!!
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Bringing this up to the top.
Sure there are more than 48 people who post here regularly.
Get off your *ss and do it.!
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | 3 days left to vote The good news is that OCF reviews have just about reached one percent! As I type this there were 60 votes for OCF on the great cancer fighters site. We are still way way behind the Pediatric alliance but that could be that both parents vote for that group while on OCF it is usually either the caregiver or the patient, almost never both who post. Still, if you are reading this post, please reconsider not voting and click here: VOTE OCF Today charm __
Last edited by Charm2017; 07-28-2009 05:11 AM. Reason: URL GLITCH
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | | MeganCannon Unregistered | | MeganCannon Unregistered
| 3 Days to go! We are now up to 73. I sent out an email to everyone on the forum asking them to please review OCF. Hopefully that will lead more people to make a review. I am sorry that some of you who have already filled out the form will get this mail, but it had to be sent as a blanket selection of registered users of this board in the last 12 months. I have my fingers crossed. . . . | | | | | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Thanks Megan for the blanket email for registered users. I got it at work this afternoon and would not have known about this otherwise. I posted my entry immediately then went on to read the other entries and voted each one as helpful.
Thank again.
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | I did this the other day I think....there is another thread somewhere right? When I clicked on the link from the first message here from Megan, it said I did it.
I think Charm had something out there and I don't want him upset with me!!! LOL Cookey said it best:)
Last edited by suzanne98; 07-28-2009 06:27 PM.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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