| | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 |
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Okay, not a hundred but 28. Review OCF. Since there are only about 30 "usual suspects" who post religously, we need to reach out to those who like to read OCF but not necessarily post. We need you to click on this link, write a little about OCF, give us 5 stars. So like they say on TV, wait there's more. Yes, in addition to helping OCF in a free and easy way, you can post a picture of yourself very easily on this site in your review. For those like myself who stay out of Facebook, Twitter, IM, yahoochat, this is your chance to see and be seen. (separate thread on why I don't avail myself of 'social network" (hint: I don't wear a baseball cap backwards either) Great picture Christine. To paraphrase John Milton: They also serve who read OCF, dont post, but review OCF. After you do your review, you can check out your fellow OCF posters' comments. charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Brian , after reading your post, I have to admit to myself that you are one of the most caring indivduals I have met in my 73 years. You can make a person feel humble and appreciative with the words you put on paper, to express your feelings. This post moved me more than any I have read on ehre. Thanks for taking the time to do it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2006 Posts: 101 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2006 Posts: 101 | Done- I'd do anything for you all!
Last edited by jennie; 07-21-2009 12:46 PM.
Caregiver to Erik -1st DX 12/22/2005 SCC of Tongue, T3N1M0, hemi-glossectomy,60 nodes removed, carboplatnin,Erbitux, 35Rads.
Reoccurrence T1N0M0 4/14/08-partial glossectomy-16 weeks Erbitux and Taxol-
3rd reoccurrence 5/18/12- partial glossectomy
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Jennie, love your picture  Thanks for the review, we are now up to 31
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | RED ALERT RED ALERTOkay, for some reason you have not gotten around to posting a review of OCF on the great non profit site to help us win our rightful slot as a GREAT CANCER FIGHTER AWARD WINNER. Maybe you logged onto the site and it looked daunting. Maybe you have read the reviews posted and thought yours would not be as elegant, as moving, whatever. Maybe you just have been too busy. Maybe you think you will wait until the last minute on July 31st to barely beat the deadline. Or maybe it is just that you do not want to enter your email address. Whatever the reason, if you are reading this, then why not click on this link and read the OCF reviews and then click "Helpful" after each review. You do NOT need to register or write anything. We need your help because s omeone (probably an overly sincere proponent of one of our competitors) and it is only one, is going back and clicking Not helpful on OCF reviews, although they sometimes skip a screen. We will not sink that low as to go to their reviews, but I can honestly say that I have found each OCF review extremely helpful. Too bad it doesn't offer wonderful as a choice, So please read what your fellow OCF members have written if you haven't and scroll through each screen and click helpful then reconsider not voting but at least do this, we only have 35 reviews now and other cancer groups are making us look like the Washington Nationals baseball team. You only get to vote on each review once. Read OCF reviews Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Just got mine in too. LOL EzJim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | OK, I voted. I'll try to find time again tonight to rewrite the review. Any idea why their site froze up? My internet connection was working fine.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Everyone who reads this post......PLEASE take 5 minutes and do the review for OCF. There are only 38 reviews which is nothing compared to how many people visit this site everyday. OCF needs this recognition to spread the word about an often overlooked type of cancer...Oral Cancer! http://greatnonprofits.org/reviews/write/1481157
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 |
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
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