#99358 07-13-2009 11:36 AM | | MeganCannon Unregistered | | MeganCannon Unregistered
| During the month of July, GreatScoop, Guidestar, and Planet Cancer are running the 2009 Cancer Fighters Awards, to identify the top-rated cancer fighting organizations in the country. Nonprofits with the most positive reviews in their category will be announced as winners and receive media coverage. Awards will be given out of 8 categories (5 geographic US regions and 3 budget size- small, medium, and large). The contest deadline is July 31st. I sure you all can agree that The Oral Cancer Foundation does a lot within the oral cancer world. Receiving recognition of our impact and earning this award would be a huge deal for OCF. With that said, if you agree we can surely use your help! Click on the link below to write a review on our foundation. Your review will help others learn about OCF. The most helpful reviews speak from your personal experience. You can best help others understand your experience by providing details of your story and specific examples. http://greatnonprofits.org/reviews/write/1481157Thank you for your help and please feel free to pass this message on to others! Megan | | |
#99602 07-16-2009 11:26 AM | | MeganCannon Unregistered | | MeganCannon Unregistered
| I would like to sincerely thank those of you who posted a review. As I read your kind and heartfelt words my eyes began to water. It truly means the world to us to hear that the foundation impacted your life in such a positive way, after-all that is what we strive for everyday. Thank you very very much.
Last edited by MeganCannon; 07-17-2009 11:06 AM.
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#99619 07-16-2009 05:50 PM | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) |  "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Lets go OCF forum posters - write your review to hopefully help OCF. It is (unlike everything else we've been through), a painless process - just follow the link Megan has provided.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Is there a deadline to this? I will write mine over the weekend.
With 6000+ members of OCF and countless others who read this but havent joined, OCF should hopefully get lots of reviews.
COME ON GUYS.......If OCF has ever helped you at all, return the favor and take a few minutes to help OCF.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | EIGHT PEOPLE OUT OF 6000. Yes, so far only 8 reviews (counting mine) Kudos to Cookey, susanspeaks, clroser, davidcpa, pandora99,RBCV and janabus10 for taking the time to fill out this rating. I used to spend a lot of time on Trip Advisor and this site aims to do the same thing for non profit organizations. Can't think of what to post or write? Just click on this link to see what we all have written for ideas. You can even just type in "I agree with DavidCPA's review" (us guys have to stick together on this female dominated board). OCF reviews on Great NonProfits It looks daunting at first but it is easy. bonus: never before seen picture of me right after my tongue surgery showing off my forearm flap scar in the hospital as part of my review. Thanks Donna (Pandora99) for the idea of including the photo. DO IT THIS WEEKEND. PS. Megan: why is the "needs" section for OCF information BLANK and EMPTY. I suggest going in and updating: Donations and memberships Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | As we say here in Yorkshire "by 'eck yer a bolshy buggar" but i echo the sentiment Charm...(god god how ever did you pick that name!!!!)
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | I need a translation Liz - does that mean you have posted your review or are going to?? LOL. Lets go Forum posters - lets help OCF. We come here looking for help - maybe our reviews will help OCF help others!
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | hey donna lol
yes i did post yesterday!!i think the nearest translation i could think of is that charm has a bug up his ass about this.
Jeez i watch to much american tv.
love liz
Last edited by Cookey; 07-17-2009 08:48 AM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | | MeganCannon Unregistered | | MeganCannon Unregistered
| Yes Christine there is a deadline! The deadline is the end of this month, July 31st! We don't have much time. Thank you so much for your help! | | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Mine is posted now. LOL Cookey!
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
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