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#99012 07-08-2009 11:53 AM
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boston Offline OP
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Hi:

My dad completed his treatment exactly 2 weeks ago. Last night while putting some cream on his neck I noticed there is still a small lump. He originally had a lump the size of a golf ball and now it is just slightly raised. Is this common? Does the lump continue to shrink? Has anyone had the same experiance?

Boston


Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
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Please mention this to his doctor right away. It might just be scare tissue or an irritation but don't take any chances.

Sue


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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My 2 lumps were all gone before my Tx ended so I to would call this to the docs attention asap.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Thanks. He has a follow up appt. with his Radiologist in 2 weeks and then they are doing another biopsy. It is very small. We were told that the radiation continues to work for several weeks after your last treatment. I hope it is not wishful thinking. My father's oncologist said the lymph node could be surgically removed. This whole experiance has been so overwhelming. If not for this support group I would be lost. If I had it to do over again. I would have hired a nurse advocate. I do not think the medical professionals give you enough info.


Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
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The doctors are correct about radiation. It continues working even after you have stopped treatments. Just remember to take a few minutes a day for you. Even to take a walk outside and sit on a step, just to catch yoru breath.

Hang in there, try not to worry about the 'what if'. It will end up stealing your time and energy. Make the most of every day and before you know it, the biopsy will be done and the results will be back.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Boston,
It's always best to check with your doctor, but the same thing happened to Richard. It took several weeks after treatment before Richard's node completely shrunk away. The MO and the Head&Neck surgeon both predicted that the node would continue to shrink after treatment was completed and that's what has happened. The RO was concerned after the 2nd Cisplatin dose that the node wasn't shrinking more, so she insisted that Richard be switched to the Ebitux.
Today we saw the HEAD&NECK surgeon and she is very pleased with his progress. After the exam, she said that everything looked excellent. Tomorrow, he has an appointment with the RO and she will order the Pet Scan and whatever other tests to be done. We will be on pins& needles until we get the results, but the doctor commented today that the cancer was very small and she expected that the treatment was a success. I won't rest easy until we get the "all clear" report and we will probably always have that bit of unease about a reoccurrence. Take care...Geri


Geri-CG to husband Richard, 62 yrs old. Former smoker, quit 30yrs ago, light drinker. Dx after tests with BOT T1N1M0. Tx to start by end of Dec. Seven wks IMRT with 2x Cisplatin-2x Erbitux. Peg in 12/08- removed 4/21/09. Looking good so far. Clear Pet &MRI 8/2/09
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boston Offline OP
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Geri:

Thanks for the information. Good luck tomorrow, my thoughts and prayers are with you.

Boston


Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
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Hi Boston,
If it were me, I'd call the doctor now and let him know about it. If he says wait until the appointment, OK, but he just might get you in earlier. Why are you just noticing this now?

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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boston Offline OP
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Hi;

This lump has always been there. It was the reason they originally discovered he had cancer. It is a lymph node. It was quite large prior to treatment and now it is still there but just raised. His dr has seen it and discussed with my mother surgically removing it. He has a follow up appt. with his Raidiologist and Oncologist in 2 weeks. Then they are going in for a biopsy. Thats what they did when they originally diagsosed him. He went in for day surgery and did the biopsy. Is this so uncommon? Should I be even more frightened than I am already?

Chris


Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
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Boston, I had surgery first followed by radiation which I am convinced is the better way. I have close friend that had radiation and chemo first, a small lump remained and then had the surgery to have it removed ( everything was fine - no signs of cancer ). He though seems to have had a far rougher time recovering from surgery than I did - healing on radiated tissue vs. normal tissue. Seems like it is 50/50 on this approach and highly debated. So, not that unusual but I went surgery first as I wanted that damn lump out and for them to do a pathology report on the lymp nodes then and there. Good luck to your Dad and let us know.


Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
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