| Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Donna,
You might want to consider Carnation Instant Breakfast VHC as it has 560 calories in the same small can so you get more bang for the effort.
Also it really helps if you could add a Signature Line so we know where your Posts come from so to speak.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Donna, get some GNC weight gain,, 1850 calories in a serving of it, I bought a container at 75%off at rite aid.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Jan 2009 Posts: 216 | What a difference a few weeks makes  and thank you all for letting me rant and responding with encouragement. Mom's surgery was outpatient, successful and she's out running around already (tho a bit slower but for 77 years old that ain't bad). Mike saw the surgeon who wanted the petscan done as he is now 3 months out of tx. ND is scheduled for Tuesday. Petscan was today and was clear except for the lymph nodes in his neck that are coming out Tuesday. They can't tell from the pet if it was still active disease or dead tissue but it's comin' out Tuesday anyhow. The Zoloft is a thing of the past and he's doing well on Lexapro.....it's like having my husband back again! I managed to get more OCF stuff into another dentist's office this week and more will go to the hospital next week as Mike's surgery is not at the same hospital where his chemo and RT took place. There is something to be said about getting to the end of your rope and tying a knot
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Congrats and lets hope all goes as planned next week.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Yay cheryl you go girl....carers deserve a pat on the back too lol
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I would say they deserve more than pat after doing this stuff myseld Liz, LOL give em what they want and smile.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Apr 2009 Posts: 10 Member | Member Joined: Apr 2009 Posts: 10 | I am sorry that you are having to go through this. So sad. I have no answers except prayer.
dx 04/09 BOT Stage 4b, scc, met to leison 6th cervical spine, May 15th, 2009, 12 rounds rt to spine. no relief for pain, top of back and right arm. started 38 rounds of rt and Carboplatin and Erbitux June 2 once a week at least while receiving RT, RT daily. Port and peg.
| | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Jan 2009 Posts: 216 | yippeee - surgery is over! Everything went well. Neck dissection on both sides, piece of the jugular vein removed left side. Pathology report won't be back until Monday or so but they did the extra blast of radiation so even if there was something there it's been treated. We're still at the hospital - likely until Friday. Mike's got some swelling on the left side, some problems swallowing solids due to swelling and three drains in. He's sitting up, getting ready to get out of bed and all in all is doing well  All the docs are really happy with themselves (and they should be). This morning we had a visit from the pet ministry - cute little fella.
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | Joined: Apr 2009 Posts: 10 Member | Member Joined: Apr 2009 Posts: 10 | I am so happy to hear that you are doing well. And that your spouse is too! I needed to hear some good news today.
dx 04/09 BOT Stage 4b, scc, met to leison 6th cervical spine, May 15th, 2009, 12 rounds rt to spine. no relief for pain, top of back and right arm. started 38 rounds of rt and Carboplatin and Erbitux June 2 once a week at least while receiving RT, RT daily. Port and peg.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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