| | Joined: Oct 2008 Posts: 251 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Oct 2008 Posts: 251 | Lori,
I followed your blog and am in awe of the courage and love that you and Ron displayed. Your words were poignantly honest yet optimistic. I feel that you and Ron had a relationship that few are fortunate enough to experience. Thank you for sharing your lives with us.
My heart and my thoughts are with you and your family.
Catherine
2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Lori,
I�m so sorry for your loss. I will keep you and your family in my prayers.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Jul 2009 Posts: 3 Member | | Member
Joined: Jul 2009 Posts: 3 | lori
my heartfelt sympathy. I am watching my husband of 32 years wilt before my eyes. He too had tongue ca dx in 05 and recurred in aug 06 and again nov 07 and most recently infiltrating to FOM and in skin and bone of oral cavity. I just look at him wondering how long we have together. So painful for him, i pray he just go to sleep.
I am across the border in MN if you ever want to meet for some comfort talk
nancyh
nancyh caregiver to steve dx 2005, x3 recurrence...no further tx would be tolerated. Had radiation twice with chemo added the second round...cancer widespread throughout oral cavity.
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Lori- So very sorry. If you need some advice or just someone who has gone through this send me a pm and I'll send you my number.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Lori, My condolences on Ron's passing, you and your family are in our thoughts and prayers! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Lori,
Sorry for you loss. Please feel free to come here and get the support you need any time you want. We all understand the loss and how this next year will be. So we are here for you.
Take care.. Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | | | Joined: Aug 2008 Posts: 96 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2008 Posts: 96 | Thank you all again for your kind words and a special thanks to the ones who took the time to add a message to Ron's memorial site. It's coming up on 8 weeks now, and I swear it still feels like it was yesterday most of the time. We are slogging through, though. I am now up in central WI. with our oldest daughter. She and her husband just bought a home, so I am trying to help with furniture, painting, etc. It gives me something to do. I know I can come here for support and frequently do. I also will try to stay around to help those who I know will be coming here newly diagnosed.
Nancy, I can't PM you, I am wondering how Steve and you are coping. Please PM me if you need support. My prayers are with you.
Lori
Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer
| | | | | Joined: May 2009 Posts: 114 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2009 Posts: 114 | I'm sorry lori. This is so hard to hear. Please take care of yourself now.
Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10
| | | | | Joined: Nov 2008 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2008 Posts: 72 | Lori,
We are all so very sorry to hear about Ron. I will be sending up lots of prayers.
Last edited by MrsGrant; 08-07-2009 04:45 PM.
*Shaylynn*
11.25.08 SCC of tongue diagnosed @ age 23 T2N2cM0
12.20.2008 Partial glossectomy & left neck dissection. Clear margins.
6.24.09-Pet Scans show 2 areas of concern
8.5.09-Recurrence-Perotid Gland and swollen node removal
9.29.09 Carboplatin & Taxol x8 Tomo x39
11.19.09 WILL COMPLETE TREATMENTS!
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