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| | Joined: Jan 2009 Posts: 10 Member |  Member
Joined: Jan 2009 Posts: 10 | Havent been on this forum for months, my mother had tongue cancer, had major surgery and 7 wks radiotherapy, it did not work, the cancer travelled to groin lymph node and PET scan showed small deposits in liver and chest. she will die, but we dont know how long. Her cancer was rare - mucoepidurmoid in the tongue, usually a salivary gland cancer, but it has behaved v differently to what they expected.
Mum: rare muco epidermoid carcinoma of left tongue base. Partial glossectomy with radial free flap reconstruction, left modified neck dissection, tracheostomy. Due to undergo radiotherapy.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Zahara
i am sorry things didnt work out well for your Mum.this is a truly awful disease with so many different outcomes.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Sorry things have not worked out for you mum. Will praying for you and your family during this most difficult time.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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