#96149 05-27-2009 06:55 AM | Joined: May 2009 Posts: 27 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2009 Posts: 27 | Big changes from last week. Tongue very swollen and raw, difficult to drink water, much less instant breakfast. MD gave me a RX for liquid Lido/Benadryl and liquid pain med of Loritab. I am hesitant to take the Loritab except at night.
I could be mistaken but part of the tongue problems could be from chewing on my tongue at night since it is so swollen. Has any one experienced that or used a mouth guard at night?
Age 63, occasional drinker, smoked for 40 years
Base of tongue, stage 4,T-2,N2B
Cisplatin 1xweek
30 RT ended 6/25
PEG removed 8/23
PET Scan shows scaring but believed no tumors 9/25
| | | | | Joined: Jun 2008 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2008 Posts: 148 | I didn't have the tongue problems you're describing Irish but other side effects sure are par for the course. Hang in there.
Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
| | | | | Joined: May 2009 Posts: 27 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2009 Posts: 27 | It seems that Chemo day is the best day. I am sure it is the steroids and anti nausea. I founf that the Compazine doesn't do didly,switched to Lorzapan. I did start taking my Loritabs. Weight is down about 5 lbs from last week. Learning only taste I have is salt, everything else seems to taste like pepper.
zzzzzzzzzthe Onco/Rad said all blood work is good, can feel lymph noded have returned to normal. However my tongue is another story. I feel that it is twice the size it used to be. Went to riteaid to get plastic mouth piece to keep from biting my tongur at night.
Age 63, occasional drinker, smoked for 40 years
Base of tongue, stage 4,T-2,N2B
Cisplatin 1xweek
30 RT ended 6/25
PEG removed 8/23
PET Scan shows scaring but believed no tumors 9/25
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | [quote=irishmist]It seems that Chemo day is the best day. [/quote]
You are one sick puppy!! lol
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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