| | Joined: May 2009 Posts: 17 Member | OP  Member
Joined: May 2009 Posts: 17 | still waiting to go to the dr. on the 26th. sores still there and no longer can tell that there is something in my throat but have been having pain in my jaw . i have been gargling with the benadryl and water and spraying the nasocort and rubbing vitamin e on it. Still no change on the spot on my tongue. I am praying really hard. My mom has called everyday to see if their is any change in the spot and wants me to try something else each time that the dr. she works for says to try.
 Dionne | | | | | Joined: May 2009 Posts: 17 Member | | OP Member
Joined: May 2009 Posts: 17 | dr. called today he is doing the biopsy tomorrow . Crossing my fingers
Dionne | | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 |
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | You know you have all of mine babygirl. Plus waht ever else I can think of.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2009 Posts: 17 Member | | OP Member
Joined: May 2009 Posts: 17 | At Dr office now waiting on tongue to get numb this crap hurts
Dionne | | | | | Joined: May 2009 Posts: 17 Member | | OP Member
Joined: May 2009 Posts: 17 | Okay mouth a little sore. Results come back Tuesday. He took one small piece and two large pieces. On pins and needles waiting.
Dionne | | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Babygirl,
So happy to hear you had the biopsy done. I'm happy to hear that you will get the results from the biopsy so quickly. I will be waiting to hear what happens on Tuesday. I will be thinking of you, we know how hard the waiting is.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: May 2009 Posts: 17 Member | | OP Member
Joined: May 2009 Posts: 17 | thanks suzanne . i really appreciate everyones support.
Dionne | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Awe do you really babygirl LOL You will forever have my support and prayers, I always had yours and I'm not returning the favor. iwant mine to be like yours,, Unsolicted, Good luck and keep smiling .
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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