| Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Dec 2008 Posts: 1,004 | I agree...Charm makes me want to donate what I can.
Suzanne *********** T1 SCC on right side of tongue Age 31...27 when diagnosed 4 partial glossectomies No chemo or radiation Biopsy on 2/2/10-Clear Surgery needed again...no later than April 2011 Loving life and just became a mother on 11/25/10 It's not what we CAN'T do..it's what we CAN do:)
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Lostpassword
THANK YOU for responding and donating plus the kind flattery. I love your screen name. Actually you are doing it right, as refunds are just interest free loans to Uncle Sam. Hope you inspire the rest of OCF posters to donate also, Peace and Love Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Dec 2008 Posts: 1,004 | Charm...how are you doing these days? Is there a thread about you that I missed maybe?
Thinking of you...suzanne
Suzanne *********** T1 SCC on right side of tongue Age 31...27 when diagnosed 4 partial glossectomies No chemo or radiation Biopsy on 2/2/10-Clear Surgery needed again...no later than April 2011 Loving life and just became a mother on 11/25/10 It's not what we CAN'T do..it's what we CAN do:)
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Suzanne
Well at least someone is still reading this sticky post. C;mon the rest of you posters, the last of the refunds will be going out soon and this post will VANISH. then I will update my signature line to show my Cyber Knife treatments right after Memorial day and ending on June 1st plus my carboplatin chemo treatments. Just had to wait until I recovered enough from the surgery to deal with the complications of radiation and chemo the second time around. Still can't swallow, not even a sip of water despite rigorous swallow therapy and the radiation is going to set me back even more. So nothing new to report. If you do donate or share your tax refund, please let me know just as Suzanne and LostPassword did. And someone start thinking about a new "sticky" post asking for donations in a different way that may work better than this one apparently has. Genetically, no one in my family has gotten the knack of being a big time fundraiser instead I ended up just like my parents who just bought the wrapping paper or candy from me after I had tried unsuccessfully to sell them in the neighborhood, and I did the same with our son. So surprise me and donate 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | As I typically extend well over 50% of my total client base each year and this year with 58% extended proved no different, we still have a huge number of people that will be filing their returns and some will contain a refund.
Point is there is still a need for this post until Oct 15, 2009 and my offer still stands that I will prepare for FREE anyone's return where the refund substantially goes to the OCF.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2002 Posts: 546 | Well, I must say I was surprised to see a post referencing my ill-fated and famous(!?!) plea for $10 donations, but it got my attention and I just made a $50 donation. Thanks for the reminder. It has been awhile since I made my last donation. It has been more than 5 1/2 years since Heather died and I don't visit these forums much anymore. I come here tonight with a request for a friend. I'm going to start a new thread, because it isn't pertinent to this one about donating, but I had to comment on this. I didn't know my name was still known around here. It was a bit of a shock to see this post with my name near the top. Anyway, my son's best friend was just diagnosed with esophageal cancer a couple weeks ago. I told his wife to check the forums for info here, but I see that esophageal cancer isn't addressed here. So I'm wondering if anyone knows of any good sites devoted to this type of cancer. Now I'm going to post this in a new thread also. Charm, thanks for the notoriety! And David, thanks for your generosity (in more ways than one).  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Rosie Notoriety? Nah: just acknowledgment of your hard work and good efforts. although "the Notorious Rosie" does have a ring to it. Actually my post was a homage to yours. Way to go with a generous donation that perhaps will inspire other OCF readers to donate also. I am sorry that your friend's son joins the cancer club. Your other posts really uncovered some facts that I didn't know, so you continue to help out the board, Five years ago my tumor was just growing unbeknownst to me, so I wasn't on this board, but please accept my sincere sympathy for Heather's death. The years don't dim the pain as much as those who have not lost a loved one might imagine. Thanks again for setting the example here. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2002 Posts: 546 | Charm, I guess notoriety wasn't the best word to use. Has sort of a negative connotation, doesn't it? It was just the first word to pop into my head. But I sort of like "the Notorious Rosie"!!! I try to remember to donate a couple times a year. I was donating every time we lost another member, but that was hard to keep up with, since I didn't come to the forums much. Besides, it was too painful to focus on the lost members. Your post was a good reminder to donate now. I will be forever grateful to Brian and the OCF members. I don't know how I would have made it without the information and support that I found here. And yes, the years haven't dimmed the pain as much as I thought. Most days are okay, but I still get hit with a wave of grief out of the blue and start crying. The strangest things will set me off. Something that shouldn't even remind me of Heather, but does anyway. It's hard to explain to someone who hasn't been through it. Rainbows and hugs.  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | | | Joined: May 2009 Posts: 114 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2009 Posts: 114 |
Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | It was a great idea last year and remains one again this year. I am just starting my taxes for 2009 due this April and wanted to remind everyone: SHARE YOUR TAX RETURN WITH OCF So, here is a fast, simple, no hassle way to show your support for OCF. GO TO THE OCF FOUNDATION LINK AT THE TOP LEFT OF THIS BOARD, AND BECOME A MEMBER (PRICES START AS LITTLE AS $50 TO JOIN AS A MEMBER WITH ONLY A $25 RENEWAL FEE). Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
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