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Joined: May 2009
Posts: 1,412
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Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
As I look at all your signatures, I notice that still seems to reoccur. Is there a reason why it does? I am guessing that there is a high reoccurance rate on this stuff, which is why my Dr said he will be seeing me every two months for several years?


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Statistics are not a good guide to recurrence as what does it matter to you if 90% get cured but you are in the 10% that doesn't? My doctors gave three reasons on why my cancer recurred and they all believe I am right on track for it to come back a THIRD time if I do not get additional radiation and chemo (which I have signed up for after Memorial Day)
1. My cancer tumor is radiation resistant
2. My cancer has "extensive perineural involvement" according to the latest Pathology report
3. Cancers with factors #1 and 2 above in their experience keep coming back if they were T-3 or T-4 and Stage IV until they win and you die absent aggressive treatment.
Still, there are plenty of people for whom the initial treatment did the trick, especially when they caught it early like you did. Mine was not only Stage IV, but my tumor size was T3 and it had spread to two lymph nodes before they caught it, the bigger the tumor, the worse the odds
[quote]Tumor Size is divided into four classes:

* T-1 is from 0 - 2 centimeters.
* T-2 is from 2 - 5 cm.
* T-3 is greater than 5cm .
* T-4 is a tumor of any size that has broken through (ulcerated) the skin, or is attached to the chest wall.

To offer a scale comparison in centimeters: a black-eyed pea would fit into the T-1 category; a walnut would be in T-2, and a lime would appear in T-3 class.[/quote]
good luck - statistics put you in a good posture


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Sep 2008
Posts: 130
Senior Member (100+ posts)
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Joined: Sep 2008
Posts: 130
I had an ear ache for 1 1/2 years. Hurt like all H*** at times. I was treated for alergies. I also developed a not quit sore throat. When I came in with lymphnodes on eitherside of my neck swollen and sore. I was treated for a peritonsilar abcessed.


40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
AmyK #95551 05-15-2009 05:22 PM
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
My Dr. did tell me it was a T1, I guess that is the best possible diagnosis. I am still trying to grasp this whole ordeal.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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