| | Joined: Nov 2006 Posts: 167 Likes: 1 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Nov 2006 Posts: 167 Likes: 1 | I have been using Evoxac for 3 months now and I can tell a difference. It is helping with the dry mouth and I can now sleep all night with out waking to needa drink. I would recomend it to anyone to try. BB
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Is it on the market yet Talbill? I would sure get some. I get dry that the Saraha seems like a lake. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Jim,
It's a prescription. Our family doc gave Dan a bunch of samples and wrote the prescription. I do think it made him much more comfortable at night. He stopped taking it after about 3 or 4 months post treatment as his saliva started to get better.
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Jul 2008 Posts: 101 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jul 2008 Posts: 101 | Margaret it is strange because my FIL didn't get dry mouth until a few months after treatment....
FIL completed treatment 10/08. CG to father in Law in india who had SCC oral tongue T2N2M0. FIL underwent surgery, neck dissection, IMRT, and erbitux without losing weight or getting nauseated. Completed October 2008. SO far so good.
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Dan took a few steps forward and one back through many months of his recovery.
Does your FIL run a humidifier near his bed when he sleeps?
Perhaps he should give the medication a try.
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have a large humidifier by my bedroom door. It helps some, but my mouth is dry anyway. It relieves the dryness in my nose tho,. Thanks Margaret, I will contact my DR today and see about getting a script.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2008 Posts: 101 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jul 2008 Posts: 101 |
I strongly doubt that they have humidifiers in India, and if they do, are incredibly expensive. I wanted to get an air purifier during papa's imrt and they don't have those either. We would have to ship one and get a converter for that, and explain how to maintain it and clean it to my in laws who have never heard of such a thing. Not really feasible in other words.
FIL completed treatment 10/08. CG to father in Law in india who had SCC oral tongue T2N2M0. FIL underwent surgery, neck dissection, IMRT, and erbitux without losing weight or getting nauseated. Completed October 2008. SO far so good.
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | A humidifier runs about $30-$35, is very light weight plastic and should ship easily. It will need a converter and plenty of clean water. It's not difficult to use or maintain. You fill it with clean water and turn it on. Have him set it along side his bed. Depending on size, it will run about 8 hours before it runs out of water, then turn it off. I cleaned mine with ammonia and white vinegar about once a month. The one problem he might have is getting filters. You would probably have to send them to him.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I would bet a vaporizer would help him a lot and they are pretty cheap.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2008 Posts: 101 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jul 2008 Posts: 101 | We are working on it; if it really does seem like a good idea to you all, it is worth the hassle. We most likely would send our own humidifier to India and have them use a converter. Papa has enough of a routine as it is trying to take care of himself so I think we would prefer a humidifier over a vaporizer.
FIL completed treatment 10/08. CG to father in Law in india who had SCC oral tongue T2N2M0. FIL underwent surgery, neck dissection, IMRT, and erbitux without losing weight or getting nauseated. Completed October 2008. SO far so good.
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