#93765 04-15-2009 11:23 PM | Joined: Mar 2009 Posts: 18 Member | OP  Member
Joined: Mar 2009 Posts: 18 | Another new issue to deal with.....husband was receiving fluids by iv due to the fact that he quit eating. (still)...the doctors have yet to do anything about it because he was gaining weight (ie all the fluids they were pumping in him daily- i think it was 2 liter per day for 7 or 8 days. Now he has developed severe swelling from his knee down. Did an ultrasound and no blockage. The oncologist do not seem too worried about it but we are. Where should i take him next to find out whats going on. His ankles look like small tree trunks and measure close to 13 inches around. Has this happened to anyone else? BTW he has 2 radiations left!! They resumed today even though has had deep radiations burns. You can see them at www.asilentepidemic.webs.com/photos
Traci ******* Spouse to Lew (59)(5 family members DX) SCC IVA/T1N2M0 BOT DX 9/08 /Tonsillectomy(cl)/ TX 12/08 (TPF)x2 /RT x35 w 7 wkly (Taxol, Carboplatin, Erbitux) Finish 4/09 / Port /no peg lost 105lbs/ 2/10 CT clear/HBOT x30/all teeth out and implants placed www.asilentepidemic.webs.com | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I tried going to that site and it won't come up at all. I sure hope you find something out for peace of mind if nothing else. I have no idea about this at all. Good luck and I hope you find out today.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Oct 2007 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2007 Posts: 104 | I think you should be persuing an explanation from his medical oncologist as this sounds like it could be a problem caused by the chemo drugs. Has his cardiac and renal status been evaluated as it sounds like he is just retaining a lot of fluid, hence the weight gain. Is he short of breath? Insist on answers, it your right as a healthcare consumer. Good luck.
Caregiver to husband Dx. Stage 4 SCC of gingiva with 3 nodes pos. Partial mandiblectomy with bone graft from iliac crest Dec. 2006. IMRT x30, Cisplatin x3. Completed Tx. March 15, 2007. Osteonecrosis & removal of graft & plate Oct. 2007. Recurrence of SCC Dec. 2007. Deceased Jan. 17, 2008.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | I couldn't access the blog either.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Mar 2009 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2009 Posts: 54 | Traci, he has too much fluid in his system. He needs a diuretic prescribed to flush the fluid. His kidneys will be busy removing the excess fluid. The medications I take for my arthritis can do that to me, so I take a diuretic everyday to prevent it. Tea, coffee and beer are natural diuretics, requiring frequent trips to the Loo. I hope this helps.
Sweetpea
********
2/09 MEC Rt Submandibular Gland,Tumor Exc,age 68; 4/09 Rt Neck Resect, Excise Rt Lingual Nerve, 10 nodes; 1 month later- Lge Abscess Drained 5/09; 4 more cancers, final path report; 6/09 IMRTx33
| | | | | Joined: Mar 2009 Posts: 18 Member | | OP Member
Joined: Mar 2009 Posts: 18 | It might of helped if i had posted the link correctly. sorry to all. http://asilentepidemic.webs.com/apps/photos/
Traci ******* Spouse to Lew (59)(5 family members DX) SCC IVA/T1N2M0 BOT DX 9/08 /Tonsillectomy(cl)/ TX 12/08 (TPF)x2 /RT x35 w 7 wkly (Taxol, Carboplatin, Erbitux) Finish 4/09 / Port /no peg lost 105lbs/ 2/10 CT clear/HBOT x30/all teeth out and implants placed www.asilentepidemic.webs.com | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Oh man,, those poor guys, I am very lucky to have nothing that bad. Thank you angels.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | Sorry to see all that you are dealing with. Nice job on the blog site, it puts a face on our disease, and some good information out in the world. A link to OCF as a source of information would be appreciated in the list that you have assembled.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Mar 2009 Posts: 18 Member | | OP Member
Joined: Mar 2009 Posts: 18 | OMG!! I am so sorry. I thought that I had posted the link as soon as I found you guys. Apparently I forgot but I have fixed it immediately as well as suggesting this be the first place to stop for information. Again, my apologies
Traci ******* Spouse to Lew (59)(5 family members DX) SCC IVA/T1N2M0 BOT DX 9/08 /Tonsillectomy(cl)/ TX 12/08 (TPF)x2 /RT x35 w 7 wkly (Taxol, Carboplatin, Erbitux) Finish 4/09 / Port /no peg lost 105lbs/ 2/10 CT clear/HBOT x30/all teeth out and implants placed www.asilentepidemic.webs.com | | |
| Forums23 Topics18,249 Posts197,138 Members13,321 | | Most Online1,788
Jan 23rd, 2025 | | |
|
