#9341 01-28-2007 12:51 PM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Dec 2006 Posts: 77 | Shrinkage.....LOL! We'll take the weather into consideration. And by the way, is it going to be a Speedo?
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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#9342 01-28-2007 05:08 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2006 Posts: 493 | Or maybe a thong...you go Mark
Tim Stoj 60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#9343 01-28-2007 06:08 PM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Dec 2006 Posts: 77 | Okay, I just came up with something. Kind of a "survivorhood of the traveling t-shirt". I am going to carry all of your photos with me when I walk in Chicago. As I am walking, you will all me close with me, but not viewable to anyone else. So I came up with another, maybe corny idea. What if we circulated the shirt I will wear for the walk among all of you donors? You could sign your name and write a short message. I could send it to the first person along with a sharpie pen and the address of where it needs to go next. You simply sign it and send it to the next address on the list and the last person can send it back to me. I imagine that postage would end up being around 3 bucks to send it on. Would anyone want to do this? If so, I would be up for suggestions of what to print on it. A gal that works for me does t-shirt embroidery and could hook me up. A message that would represent all of us would be good. Or, I could use one of the OCF t-shirts, though I am thinking that there isn't a ton of room for signatures left after the logos.
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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#9344 01-28-2007 06:08 PM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Dec 2006 Posts: 77 | Okay, I just came up with something. Kind of a "survivorhood of the traveling t-shirt". I am going to carry all of your photos with me when I walk in Chicago. As I am walking, you will all me close with me, but not viewable to anyone else. So I came up with another, maybe corny idea. What if we circulated the shirt I will wear for the walk among all of you donors? You could sign your name and write a short message. I could send it to the first person along with a sharpie pen and the address of where it needs to go next. You simply sign it and send it to the next address on the list and the last person can send it back to me. I imagine that postage would end up being around 3 bucks to send it on. Would anyone want to do this? If so, I would be up for suggestions of what to print on it. A gal that works for me does t-shirt embroidery and could hook me up. A message that would represent all of us would be good. Or, I could use one of the OCF t-shirts, though I am thinking that there isn't a ton of room for signatures left after the logos.
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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#9345 01-28-2007 06:13 PM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Dec 2006 Posts: 77 | And for those of you sending checks, I plan to hold them until the walk in June. You could post date them if you wish.
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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#9346 01-28-2007 06:41 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 794 | TErrific idea....That's an ingriguing idea.....You would have to somewho keep track of where it was..
..be sure to place a cardboard between the layers of the shirt.
It would be something like the recent campaign by the ACS of having persons in a community come to the cancer center and sign a banner that was sent to DC.
If you can't send it around, you could write the names yourself, or have a print shop do it for you.....perhaps at a mall.
You are a dear to think of this. If you do it yourself, you could use paint markers. (Here is a dear, personal story: When my mother turned 75, the entire family got together for a party, and each member signed a black sweat shirt as her birthday gift, since nothing was as important to her as her family. She loved that shirt. When she died (of natural causes) the next year, we chose to bury her in that shirt....to surround her one last time and forever with the names of those she treasured so.)
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#9347 01-28-2007 07:23 PM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Dec 2006 Posts: 77 | I could do it myself. Let's see, if we get lot's more people, I probably will just either write all or names on, or have them put on at a print shop. Because if it is a lot of people, it might be hard to keep track of.
But if I do send it around, I will make a list of everywhere it needs to go. Once it hits you, cross yourself off and send it to the next name on the list. Maybe once you receive it and then again when you are done with it, you email me so I know where it is. Something like that.
And the shirt for your Mom, what a great idea. I am sure she is smiling down knowing that she is forever surrounded by the love of her family. That is an awesome story.
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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#9348 01-28-2007 10:29 PM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2005 Posts: 325 | Another alternative is to scan all the pictures into your computer, then print them onto that paper that makes iron-ons and you can make the t-shirt yourself, there are several companies that make that paper, and Wally World or the Big Red K usually carry the stuff.
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#9349 01-28-2007 11:33 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Amy, I think that's a great idea. However, bear in mind that if they do the same thing in Chicago as in NYC, you should know that they have t-shirts for the walk that are given out at the walk. At last year's walk everyone wore them, however, Barbara Boland and her family wore "Team Boland 2006" shirts. She has a big family that all helped her raise the bulk of the money raised for that walk and I think most of them were there. Check out http://www.oralcancerfoundation.org/gallery/index.html for pictures from last years walk. BTW, the first picture is of Sheldon Sax, Barbara Boland & yours truly, from left to right. Since I will be away in February, and our walk is in April, I will have to keep with the original idea of carrying the photos. Again, thanks to all of you that plan on sending me checks and photos. Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#9350 01-29-2007 05:43 AM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Oct 2006 Posts: 248 | Wickdds---mnmomof3---Jam---Andrea---Carol L---Linroth---Jordan12---August---Chuck F---MD50
Not to shabby. The makings of a great team. Together we can make a difference. Love to all of you for your generous spirit.
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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