#9199 01-14-2007 09:38 AM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | OP  Senior Member (75+ posts)
Joined: Dec 2006 Posts: 77 | I am back in business! I was discharged from the hospital around 10:00 this morning. Everything went just as good as I could have hoped for.
Since my brain is still a bit tired, the following is taken directly from the dismissal summary:
patient underwent reection of the right posterior mandible with a right buccal transpositional flap. Surgigal pathology was identified to be SCC that did not invade the osseous structures of the periosteum.
So it was all good news. It wasn't necessary to remove any nodes. It even turns out that I shaved my thigh for nothing as they didn't need to borrow the skin after all.
I definately feel better than I expected I would. Today is the worst day so far, according to the Doc, today is the day that the swelling should be peaking. My face is huge and hard. I am very numb on the right side of my mouth, but am told that I should have some improvement over the next months. I do understand that I will have some permanent numbness.
The biggest challenge for me is the diet. I will be eating a "no chew" diet for 6 weeks. In the hospial, there wasn't a huge variety, but at home, I think we'll be coming up with a few more ideas. My Brother, who is the biggest foodie around, is currently out grocery shopping for me. He is trying to be very creative and I can hardly wait to see what he comes up with.
So I feel quite good, except I fade out pretty quickly with no notice. That's where I am now. I gotta go lay down.
Thank you all so much.
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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#9200 01-14-2007 10:14 AM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2005 Posts: 325 | Sounds like you came through with flying colours. That's WONDERFUL! Hope you continue to do well.
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#9201 01-14-2007 12:25 PM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 248 | Way to go Amy. Great news for you. Let's continue to send those positive vibes to Andrea as she is having her tonsillectomy tommorrow.
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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#9202 01-14-2007 01:00 PM | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Amy,
I'm so happy things wet well for you!
Before you know it, you will have many recipes coming your way for the no chew diet.
Rest, heal, and eat!
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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#9203 01-14-2007 05:07 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Hey, Amy- good for you-by the way, do you like raw oysters? They just slide right down [my hubby used to order 2 dozen at a time when we were on any coast. Amy Myren
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#9204 01-15-2007 07:01 AM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Hi Amy, glad to hear that everything went well. If you have a blender or food processer you can mix up all kinds of things. Soups, souffles, pasta, eggs, pancakes, stews, and crock pot recipes work well. Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#9205 01-15-2007 08:46 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Amy,
Get Carnation Instant Breakfast VHC. It has 560 nutricionally calories in the small 8oz can. You must get it through your pharmacy like Walgreens or CVS, etc. I still drink it to supplement my diet because eating is still very boring.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#9206 01-15-2007 11:04 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Amy - If you have trouble finding the Carnation Instant Breakfast VHC like I did, you can order it on line. It only took about 5 days to have my son's VHC delivered. Glad things are going so well for you.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#9207 01-15-2007 11:29 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Amy,
Glad the surgery went so well. Here's to a speedy recovery. Keep that blender going and try lots of soups and milk shakes.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#9208 01-15-2007 01:39 PM | Joined: Dec 2006 Posts: 77 Senior Member (75+ posts) | | OP Senior Member (75+ posts)
Joined: Dec 2006 Posts: 77 | You'd be surprised to see what I am eating. I am not that many years removed from smashing up food for my babies and I haven't forgotten all of the old tricks. Who knew how tasty a mushed up banana could be? And this is one I might be able to market: smushed up frosted cupcake, mixed with milk. Even the kids liked that one. And so easy to swallow.
I am anxiously awaiting the swelling to subside a little bit. My face is as hard as a rock and that's pretty uncomfortable. Some of the numbness is starting to wear off and I am actually noticing a few new pains that were masked by the numbness. Aside from the obvious incisions, it's pretty banged up in there, lots of random scrapes and cuts.
I feel so lucky to have come through this so nicely. I really was expecting to be knocked completely on my butt for a while. I don't feel like dancing, but I am perfectly able to sit on the couch with a magazine. It is actually quite fun to just be able to rest when I feel like resting. I am usually the caregiver at my house. Caregiver to perfectly able bodied individuals, mind you. The last couple of days have been really nice for me. Someone smashes up food for me. I eat. I have pain, someone brings me my pills. I am tired, I take a nap. I just might milk this for the whole four weeks!!
Thanks for you thoughts and food suggestions. Sorry Amy M, no oysters for this girl, though I am sure that they slide down quite nicely.
Amy
Dx 11/30/2006 Stage I SCC of gum/surgery 01/12/07 resection of the right posterior mandible with a right buccal transpositional flap 3 teeth removed/reconstruction to come in 9-12 months
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