| | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) |  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | Charm - it would be better to give the what you need to know about oral cancer brochures out at schools. There's info in it that anyone can use. The cards really only have information about how to find the OCF web site and this message board. They are really targeted for treatment centers where we can get more patients directed to this forum where all of you veterans can help them. If you have the wrong mix of supplies, just email Brittany.
For those of you that haven't heard yet, Brittany is going get back into working in environmental issues, probably in Colorado. She has a history of working with AmeriCorps and that work, as it turns out, is her true passion. She is in the process of interviewing for her replacement, and will be staying a week or two to train that new person. She will be dearly missed as she has learned so quickly, has such a big heart, and really wants to make a difference in the world. I personally will miss her many contributions and ideas, as well as her unfailing help, even though she was only with us here in California for a short time.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | My daughter is the charge nurse of the Heart Unit in Steubenville, Ohio at Trinity Hospital. She took some OC info to work to put in the area where she hooks her patients to the treatment machines they get hooked to. She also put them in the waiting room in her area.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 |
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Thanks so much, every little bit helps!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | |
| Forums23 Topics18,264 Posts197,178 Members13,361 | | Most Online1,788
Jan 23rd, 2025 | | |
|
