| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Speaking of old minds, I have to laugh I just put Nancy as the one getting married instead of Suzanne. Sorry ladies, and David don't say a word. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Hey there, Jim. I believe Suzanne is the bride-to-be. I've been married now for almost 35 years! And, we're definitely holding on to each other. Thanks for the good wishes tho. Take care - Nancy
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | I know some of you were interested in the outcome of my mom's test results. The dr. told her this morning that she had "a little cancer" in her lymph node in her neck. I think he was trying to break the news gently that she has it again. He said it would need to be removed and he wanted it removed before March 20th. Said it may not may not affect a nerve going to the right corner of her mouth. I asked her if he mentioned radiation/chemo and she said he told her they would have to wait until the surgery and see how everything was. She is down to 108 lbs. now and wants to know how she can keep her weight on. During the three bouts w/mouth cancer before she's lost about 80 pounds - she doesn't have another 80 to lose. Any ideas for fattening her up? She's in pretty good spirits. Says that life doesn't have any guarantees so she is putting it in the Lord's hands.
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | A lot of high calorie fat laden foods.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Try a few chocolate peanut butter milk shakes per day and it will hopefully put some weight on your mom. At one point I was drinking 2 or 3 per day for several weeks.
Its easy and has alot of calories, at least 2500.
All ingredients are approximate.
3 cups chocolate ice cream
2 cups whole milk
3/4 cup peanut butter
1/2 cup choc. syrup
1/2 cup carnation instant breakfast
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Christine, I made spaghetti nd meatballs today. I overcooked everything so it would be tender. That's the best tasting 1 bite or two I have had in ages.,I had 3 small saucers of it that I mashed with my fork. it was kinda messsy lookin but good. I tried the roasted pecan syrup . It's very tasty for the 1 bit or 2. Not much burning either.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Christine, thanks for the chocolate/peanut butter shake recipe. We'll try that! Hope you are recuperating ok from your dental work. Hang in there!
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Nancy
Hope it works for you. Im not doing the best since surgery, so need to take my own advice and drink a shake everyday again. Glad you posted, it reminded me to pay more attention to my intake. Thanks
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Christine, your milkshakes are getting as famous as Carnation VHC that David tells us about.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 |
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
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