Previous Thread
Next Thread
Print Thread
Page 2 of 2 1 2
Joined: Dec 2008
Posts: 1,004
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Dec 2008
Posts: 1,004
Hi Charm...first, I agree with you...10 days sure does seem long. I know you can do it:)

I love to play puzzle games. My fiancee bought me a Nintendo DS with a game I love called Cradle of Rome. It's a game that you match 3 of a kind (not cards, same kind of tile) then they fall and you have to clear the board. That kept me and keeps me very busy. I would HIGHLY suggest this. The battery lasts a LONG time and it is small, light and easy to carry and use.

If you have a laptop I think that is good too. Everyone is different and your doctor may think you can't but you can surprise them. I work in customer service and I NEVER say I can't do something. Who care what we can't do..it's what you can do.

I'm sure we will chat before you go in but if not...GOOD LUCK!! I cannot wait to hear how it all went. I will be thinking of you and wishing nothing but good things for you. Will you let us know what time your surgery is for? My guess is you won't find out until Tuesday.

(((((HUGS))))))

Last edited by suzanne98; 02-22-2009 09:49 AM.

Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Joined: Jul 2008
Posts: 228
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Jul 2008
Posts: 228
Well, you won't need much in ICU, I had a marker board to communicate and basically if I wasn't sleeping I would watch a few minutes of tv. When I moved out of ICU to RCU I had books, coloring books, my computer, magazines, etc. Get a lap desk for your computer. It has a soft underside and a hard top. You can get them from barnes and noble or off amazon. My mom would turn on the tv every time she was in the room and she would put it on HGTV and to this day, almost a year later I can't watch HGTV. I got really bored toward the end of my 11 day stay, so good luck staying entertained! Go on a lot of walks while you are in there. That was a good bit of entertainment.


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


Joined: Nov 2007
Posts: 681
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Nov 2007
Posts: 681
I like to have cushy pillows for under my arm and head. The best are the roll type filled with the same beads used in Beanie Babies. They really cusion arms with IV tubes and can be used in the back or anywhere you need some cushioning. I would recommend reading material in small, lightweight format (Reder's digest vs. large magazines or heavy books) and short articles or stories. It is very hard to concentrate for long at first. I probably would have thrown something at anyone who turned on the TV - there is enough noise in the hospital. I bought a wipe off board and made a printed list of possible requests before my recent surgery and used neither. The board was cumbersom and the list was never what I needed to say until I was able to speak anfd then I did't need it. Index cards worked best. Click pens with clips are a necessity. I had a hard clipcoard with an outside clamp for paper and kept extra pens, index cards, lists of phone numbers and papers inside. It was a good prop for puzzle books, magazines and reading material.
If possible, try to have someone with you for meal time once you are able to eat and for doctor rounds.
I treated myself to a thick cushy, long dark kimono which was great for when I got rid of the IV tubes and could sit up and move around. I almost forgot that I was wearing hospital gowns underneath.
Most important - bring a sense of humor and remember to greet everyone with a smile - even if you are in agony.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
Joined: Aug 2008
Posts: 716
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Aug 2008
Posts: 716
Charm,

I spent 9 days in the hospital for severe dehydration and that's where I finished my last several days of tx. TV, magazines and morphine put directly into my arm was the best.

I'm not going to lie, I might have enjoyed it too much...the morphine that is..I also liked having visitors, even though I couldn't talk.


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
OP Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
THANK YOU ALL this post is my very first one on my brand new laptop using the free wireless link - not secure but I have no real secrets to steal on this.
I have to practice with this stupid VISTA so will be signing off (plus need to learn how to use this webcam that came with it) I could not resist this best buy deal of an ACER aspire 5515 with 3 GB memory and 160 gb hd and cd/dvd plus wireless with high def 15.6 inch screen and free case and free wireless microsoft mouse for $399 (especially since my sister insisted on buying it so I email her from the hospital and use the webcam so she can see me as she needs to get back to work in san francisco so she leaves tomorrow) I am so blessed with family love. Now to sit with her and the wife while they critique the fashions on the academy awards.
again, thank you all for the responses.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Nov 2007
Posts: 681
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Nov 2007
Posts: 681
Have fun with Vista. Sometimes it's like learning to drive in reverse at 80 mph but eventually you'll get it.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
Page 2 of 2 1 2

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,264
EzJim 5,260
Brian Hill 4,918
Newest Members
@kellyannerskine, Jill Back, Bad_Kitty, Rdh, Patrice Bennetts
13,376 Registered Users
Forum Statistics
Forums23
Topics18,266
Posts197,183
Members13,376
Most Online1,788
Jan 23rd, 2025
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5