#8864 11-27-2006 11:31 AM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Oct 2006 Posts: 160 | Brian, Thank you so much for this great website, your time, your experiences shared, and especially for being a voice for all of us here!
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#8865 11-27-2006 12:20 PM | Joined: Apr 2003 Posts: 136 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2003 Posts: 136 | Thanks Brian, your dedication is greatly appreciated and is helping scores of us.
cu,
larryb
'01 diagnosis.. jaw hing and base of tongue. surgery not possible. JHU used radiation and chemo to seemingly rid me of the beast. peg for about 19 months. 100 cases of 24 cans of liquid food. 9 months eating therapy. 3x esophagus stretches. non-smoker. previously a social drinker.
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#8866 11-27-2006 01:25 PM | Joined: Jan 2006 Posts: 107 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2006 Posts: 107 | Brian , you still here ? Thanks a million bro.
Lenny | | |
#8867 11-27-2006 01:26 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Brian - Thank you so very much for your dedication and compassion for so many of us. You have made such a difference in our lives and given us hope and the courage to keep going at the times when we needed it the most. I am so grateful for this site.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#8868 11-27-2006 03:42 PM | Joined: Oct 2005 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2005 Posts: 126 | Brian,
OFC is truly a service to humanity. I am very appreciative and thankful that I found OFC as it provided me and my family help and hope over the last year.
Congratulations and thank you for creating the foundation and your dedication and hard work.
CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations
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#8869 11-27-2006 03:55 PM | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | Brian;
Congratulations on your postings! This website is a wonderful source of help, hope, and inspiration for everyone involved with this horrible disease. Your dedication for this cause is sincerely appreciated.
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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#8870 11-27-2006 04:24 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Knowing full well that OCF has saved my sanity and that I have thanked you in my thoughts 2000 times or more, here's wishing you 2000 more posts and many healthy, happy years to come. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#8871 11-28-2006 06:53 AM | Joined: Sep 2006 Posts: 23 Member | | Member
Joined: Sep 2006 Posts: 23 | My boyfriend's family credits me with saving his life. I credit Brian with giving me the cojones to step up, take control & do so.
I was given his phone number by the American Cancer Foundation (or something) and, not realizing who he was, or knowing about this site, I called him. Won't go into details but once I explained the situation, Bryan advised me to do anything & everything (and don't worry about explaining it till later) to get the bureaucratic wheels moving him into a treatment program. . . and that's just what I did.
Thanks Brian! He's doing better than we ever expected.
R-
CG 2 fianc
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#8872 11-28-2006 03:16 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Brian, you're a "legend" !  Thanks heaps for creating this wealthy and knowledgeable site, and keep on postin'! Cheers! Tizz 
End of Radiation - the "Ides of March" 2004 :-)
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#8873 11-29-2006 08:07 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Brian- You have devoted so much of your life and finances to this cause, THANK YOU for having the vision to help us all. TO EVERYONE---get the word out and get some donations in to support this wonderful work!!! Happy Holidays, Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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