| | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Hi Jim,
I got home yesterday 7PM and am checking up on everyone. What an awful feeling I had as I read the beginning of this thread! I should have started at the end instead of page 1.
I have had you in my prayers for an easy time with the repair. We had a newborn relative who had to go through open heart repair because of a very rare defect which showed up when he was 3 days old. He is now abut 3 months old and doing well. If a delicate newborn can make it through, a tough old bird like you should come through fine.
Wishing you well,
Malka
Last edited by Malka; 01-14-2009 07:17 PM.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jim,
You'll probably be walking out of the hospital Tues afternoon!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 42 | you know you would hear from me...im sure most dont know i do call him or talk to him on here and ask how things are going... im not as cold hearted as you have most think i am... i just bet no one knows i picked up his meds at the drug store the other day and dropped them off at his house for him... but i forgot im cold hearted...i dont want praise from anyone for anything i do but at the same time i dont want downed for everything either... i do more and think more then anyone here knows i do... all anyone hears i beleive is the things i dont do or say.. but thats ok i understand jim has alot on his mind and on his plate.. you know there are alot of things i would not know about him if i didnt come to this site and see it.. even when i ask him he doesnt tell me as much as he does all you ppl so thank God for this site or i may never know what all is going on with him for sure because he lets everyone here know whats going on and how he feels and all...i do know hes not as tough at times like he lets everyone to believe... i guess a person can be so different behind the computer screen...
i will sign this as s person who does care.....Barb
Barb
| | | | | Joined: Jun 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 42 | I SHOULD ALSO POST I ONLY WANT THE BEST FOR JIM,,,I HOPE HE COMES THRU THIS WITH FLYING COLORS..
Barb
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Jim is one of OCFs most beloved members, we all wish him well. Everyone only wants the best possible outcome for all members who have the misfortune of enduring oral cancer and of course their caregivers and family members. Lets all pray together for the best and not disagree. Hoping and praying that this is the best year for all of us. Please make sure that we get updated info about your surgery, doesnt matter who it comes from. Updates are just very much appreciated.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | OK I do owe BarbT a big thank you. She was a part of my life for so long, I guess I tend to act foolish towards her at times. She has come anytime I needed her and stuck with me. I still miss her and need her but somewhere our train got derailed and made a mess. Sorry Barb and whatever it was, I hope someday I know. You are great and I was tending to turn my head. Take care of the 2 grandkids and enjoy them.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I posted in General the update for tonite or rather for 5AM. LOL too much typing for theese fingers and brain.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2008 Posts: 38 | Hi Everyone. Just wanted to let you know Jim had his surgery. It took 6 1/2 hours, but he's came through it good. They have him on a ventillator, which he'll be on for 2 or 3 days. I'll keep you posted. He'll be going into Acuity Care after he gets out of the hospital. We're hoping it's here locally, so that the family can all go to see him there. I'll let you know when there's more to report. Thanks so much,
Carol | | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | That's great news. Thanks so much for posting. Tell him we're rooting for him.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Yeah Jim!!!!! Glad to hear the surgery went well.
Thank you for posting.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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