| | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | Welcome to OCF where you will meet a lot of caring people.
A lot of treatments depend on tumor size, location and whether it has spread or not. If you ask your doctor(s) they will tell you...Your RO or MO ought to answer that question. What did the ENT say? It's very overwhelming, take notes and jot down questions on paper before going to appointments.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Elin,
I am hoping that you and your husband come through this with "flying colors." This is a long and life altering journey but it is endurable. You will find that even if we have not all had the same experiences we live in the same community. Ask any question and you will find the answer here or be directed to it.
Please put relative information in your signature line. It helps people respond to your particular case. This can be done by accessing "My stuff"/"Profile" and scrolling to the bottom.
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Dec 2008 Posts: 18 Member | | OP Member
Joined: Dec 2008 Posts: 18 | I want to put that stuff in the signature line, but I'm still learning the "lingo".
I'll go start one, and as I learn more, will edit it, and thank you... | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Elin,
Editing Signature Line:
It helps the responder to your Post if you include facts about your Diagnosis and Treatment, etc under your Signature. See mine below as an example. To add to your signature go to the top of the screen and click on MY PROFILE. Then click on EDIT PROFILE and scroll down to the Signature Block and type away. Once you add it, it appears every post you make and your questions and even responses are more understandable.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Welcome to OCF, wish it was under better circumstances but know everyonr is here to listen and help! Good luck in your battle and God speed to both of you. Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. You will find lots of help to guide you thru this. Its important as a caregiver to have a place for support. Ask questions and we will answer to the best of our abilities. Best of luck to both you and your husband.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2008 Posts: 18 Member | | OP Member
Joined: Dec 2008 Posts: 18 | Thanks for the messages. I think I have the signature now, but it isn't showing in the preview.
I searched on tooth extraction for our latest question, and can't find a definitive answer. Hubby's teeth are strong and good, but the dentist in UCLA said that three "ought to come out", but then said, "Two should, because of the bone quality around them". Is there a tooth forum? (tooth fairy?)
He has his stents for flouride now, too.
Elin, artist and Wife to Ron, neck lump 8/08
Ron, age 68, Dx 11/23/08, T2N2bMx BOT Stage IV, treatments begin January. cisplatin x 3 and rads 35x, one chemo down and rads x4 as of 1/20.
| | | | | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 309 | because radiation can cause problems if dental work is needed later, they are very cautious about them prior to starting radiation and will many times recommend removing any they feel will be problematic later, so you dont have more worries or chance of future complications you do not want to have to contend with.
you may want to get a second opinion but he probably is correct.
Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
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"Those who think by the inch and speak by the yard, should be kicked by the foot."
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Elin,
Welcome....you will find this site to be so helpful. It has helped me sooo much I can't explain. Ask as many questions as you can think of. We will always be here to help and listen.
Good luck to you
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Elin,
It is likely that they felt that there is bone loss around the two teeth. Has Ron ever been diagnosed with periodontal disease? Did they give you a reason why the 3rd tooth should be removed? It would be a good idea to be sure that the teeth really need to be removed.
Jerry (Not the tooth fairy, but a dentist)
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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