| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Lottie:
Im happy to hear your husband is doing better. It takes a while to start getting back to normal. Sometimes it seems to take a very long time. Im sure its very encouraging to have him eating again.
Ive had my peg tube for 1 yr 5 months, which seems like forever. It has served its purpose and got me thru 2 rounds of OC. Very soon it will be removed as will my port. Even with having the peg tube, I only flush it and use it for meds now, Im always hungry. Feels like Im being starved to death. When I get hungry, I need food immediately or I start to feel sick.
There are alot of easy food for your husband to try listed under the eating heading. He may do well with things like scrambled eggs, cream of wheat, milk shakes, cream based soups, mac and cheese, yogurt, pudding, canned peaches. It may take a while for his sense of taste to come back, things might not taste right one day and will be great a week later.
Its day by day progress. He may do great for a few days then revert backwards. Dont get discouraged by that, its all part of the healing process.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2008 Posts: 2 Member | | Member
Joined: Nov 2008 Posts: 2 | thanks Margret your diet sounds real good to me......I've completeted treatment, raidaition 7weeks and chemo Erbitux and i'm loosing pounds and nothing tastes good but i'm going to try yours thanks, jeff | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jeff,
How long ago did you finish Tx?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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