#85058 11-29-2008 09:06 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I am wondering if anyone else had the radiation sed implants in their tongue? It seems I lost so much of my life, that I am wondering if it's from the rad seed implants. I was talking to my ssiter ths morning and asked how different relatives are doing. One of my Cousins had died, very young guy, and she told me he had died from work relatedinjuries this past Feb & March. That is the period of time when I was in isolation with the im-plants. Heck, I sure dont remember nothing for that time period and from the precededing Sept and after the implants. Most things for the period after implants are blank too. My memory for the last 3 months or so isn't bad. just the preceding ones. Anyone else have this problem?? I sure would appreciate the info..Thanks All
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Jim,
That would be an emphatic YES! Not to the implants, but to the rad/chemo brain and memory loss and missing time. While going through diagnoses, treatments, and some pretty horrible after-effects, I was also living with the pain and the fear, just like everyone else here. So much of that time is a blur to me now, 2 years post Tx. Reading posts by people in treatment is reminding me of so much, and some of it I STILL don't remember, but my family does.
PS: I'm still waiting for that EZJIM booster shot - ref thread "Heart now, too?"
Lani
Last edited by Lani G; 11-29-2008 10:48 AM. Reason: clarification
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Lani, on my way to read it and I loaded the needle with a double dose. This not remembering can make ya wonder. Sorry you went thru this stuff too.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Jim,
I feel better already! If only the Doctors' meds could work that fast.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | I don't necessarily contribute memory loss to radiation or anything like that but more to the really "good drugs" I don't remember a week past my surgery. Wether it is true or fiction I was told that when people have huge surgeries or proceedures that along with anestetic there is a drug given to give the person amnisia. Somthing about the body doesn't react but the mind can with anestia. That being said I think it should be able to get it as a perscription drug... And Cheers...
(and NO I am not a drug addict just like the idea of not remembering some things.)
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | I do think it's the rad/chemo because of the quick decline and the timing, but then I also spent an awful lot of time very malnourished, so maybe that's also a factor. Or maybe the only factor and rad/chemo are innocent?
My eyesight also took a severe dive during that time. I went from Walmart readers pre OC to bifocals post OC. I know it would have happened gradually anyway with aging, but again, the quick decline and the timing. That also could have malnutrition as a contributing factor. My eye Doctor did say he's seen it before with cancer patients, though, and thinks there's a connection.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | They used some type of wonder drug to put me ot of it for a few days. I over reacted to it and was out longer than they wanted When I woke up , the next day I would have woken up in a rest home. Either I over reacted or was given too much of that medication.Maybe this is what caused my memory loss. Noone will tell me what happened and what I missed.. I get the same answer from everyone, Jim. It's better that you don't know.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | That was for the tongue implants 5 months after surgery.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Jim,
I'm sorry. I didn't mean to take this off subject on you. I don't actually know what your rad seed implants are, or what they're for. I've never heard of them except from you in your posts.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I actually have been trying to find someone that had the implants.. maybe between us we could figure it out. I do know that they put you to sleep and then in the OR the surgeon goes up thru your chin and implants ,what it seems they call seeds. Then they take you to radiology to make sure the seeds are in the right places. THen back to OR and put the radiation into the seeds and then isolate you with lead around you and noone bothers or comes near you for awhile. After a few days they remove the seeds and take you out of isolation.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | |
| Forums23 Topics18,305 Posts197,297 Members13,504 | | Most Online7,516 Mar 21st, 2026 | | | |