| Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | I just received an email that they are not going to use me in the commercial. It was a very nice email from one of the interviewers.
I will be anxious to see who was picked and hope that some OCF members are selected for this project.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | Well I guess I was really too slow haven't even sent mine yet waiting on a friend...but who knows they may take late entries...or is that pigs fly lol
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I also received an E mail telling me that their response was far greater than anticipated and that they have not yet decided if I am needed.
I only sent them the newspaper article about me shortly after I finished my Tx. I'm not as tech savvy as most of you are.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I haven't heard anything from them yet. I imagne I will tho. Too bad you didn't get picked and I probably won't either.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: May 2008 Posts: 219 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: May 2008 Posts: 219 | All I can say is if they really want the truth of this disease, they should pick some of you all. Good luck and hope some people from OCF and OCF are acknowledged.
Angel
SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 67 | Everyone has to realize that they have strong ties to another organization, and there original plan was to use actors. This is not like the TV shows that OCF has arraigned to have air stories. They came to us in the 11th hour when they were not getting the people that they wanted elsewhere. It will be what it will be. None of us, nor OCF have any control over this. The casting director and possibly input from an organization that isn't us will determine the outcome, and my guess is that they will have someone say something scripted, which if you are a survivor, might be drawn from your statements, if an actor, then what their writers decide.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Brian,
Do you know the other organization? SPOHNC, by any chance?
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jul 2006 Posts: 388 | Is this something we all will be able to watch on TV, or is it locally produced? Please keep us all informed - THANKS! Jane 
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2008 Posts: 551 | Jane,
I believe its a national campaign.
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08 Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016 Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 794 | Dear All----
I wrote to Terry (My note is the first one, below) to ask whether the notes we have been receiving are to be taken as rejection notices or not.
His response follows my note. Now it's all clear....as mud. Good luck to all. Sitting down here in bayou country, I am not expecting the chance for sudden fame, but some of you "up there" might still get a call. It'll be fun to watch to see how this goes. >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> MY LETTER TO TERRY: >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Dear Terry, Thanks for your prompt response! You are so kind and gentle in your responses that it is unclear whether or not you are sending rejection notices! I was not pressing for myself to be included. I was simply not certain whether the note I received was to be considered as a final note.....Of course, there must be some culling of participants after an open audition, and I know that several other friends from the Oral Cancer Foundation were also not certain about whether your note was a courtesy progress note, or a soft rejection. Since I have your "ear," how about clearing up the process for this particular project for all of us: Has the casting crew culled the list and made recommendations to the producer, and were your emails sent yesterday intended to be rejection letters, based on the auditions, or are all such decisions yet to be made by the producers? Also, will any persons not involved in a live audition be considered for the filming? I will pass along your information to the members of the Oral Cancer Foundation forum, and perhaps you will have less email on the subject! Thanks.... --Colleen T. >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> TERRY'S RESPONSE: >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Hi again Colleen,
I was just trying to be as honest with you as I can about the status of our project. I do not want to get your hopes up because certainly the odds are more in favor of those who were able to attend a casting session being selected for the commercial than those who were not. The casting sessions allow the director (who is also the person that will be asking the questions when it comes time to shoot the commercial) opportunities to meet people and assess whether or not they would be good to use in the commercial. There are quite a few factors that go into the selection process -- aside from the obvious, a lot of it is the director's "gut instinct" or "feel" for a person. But in reality, if someone has a great story, but has difficulty in sharing or talking about it in a way that engages the audience they're talking to, unfortunately, they will most likely not be selected. There are times though when the story triumphs and the director may take a chance on someone and "coach" them along the way too. But those instances are rare.
As for our project, we are still collecting information and stories and no decisions have been made yet as to who has made the cut and who hasn't. All information will be reviewed early next week and those who did not attend casting sessions but submitted videos (either through email or on DVD) will still be considered -- although like I mentioned previously, their odds of making it are certainly lower. However there is always the chance that if the producers and director find someone who did not attend castings but whose story interests them, will be pursued.
Once we make our selections, we will reach out to those selected and begin scheduling things further. Hope this clears things up.
Thanks again, Terry
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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