| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jim,
I'll pay you triple what they pay me if you want to take over the horn tooting position and you can keep anything they pay you.
But the only reason I didn't mention the VHC is because she said she will be getting the Peg today and I've heard others say it's to thick to use with the Peg. I'll have plenty of time to educate her after Tx ends.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2008 Posts: 7 Member | | Member
Joined: Aug 2008 Posts: 7 | Hi to all, My husband has been waiting for his surgery and now it is almost here.. It will be at the Mass Eye and Ear in Boston on Friday. We know the tongue and jaw are involved but we do not know how radical the surgery will be. We have dealt with the swallowing issues since his first bout 6 years ago and he did OK, slow but sure. My big question going into this is what is speech like after the surgery? He will not have radiation because he had the max with the first bout. I would love to hear how folks did post op and how long it was before he can expect to be back on his feet. The doctor only tells us about what the worst case scenero might be, I want to hear some good stuff. Thanks Elem | | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Hi there- You can PM me if you'd like for more answers. I had a full glossectomy 2 years ago. My speech isn't great but its intelligable and I wear a prothesis to help with certain sounds like L and G . Its a long recovery process and everyone has different levels of success eatinga nd speaking depending on how the surgery and recovery goes.
FEel free to contactme if you have more questions.
You might want to start another thread in the forums so more people can answer your specific question.
K
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
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