| | Joined: Oct 2006 Posts: 46 Contributing Member (25+ posts) |  Contributing Member (25+ posts)
Joined: Oct 2006 Posts: 46 | I second what PeteD says about the UW: You'll get first-rate care there. And having someone along with you for appointments is super helpful. Keep asking questions of those on this board. There is a wealth of knowledge and experience here, so don't be afraid to ask whatever comes to mind. That said, it will be easier for people to answer you once you have more specifics on your diagnosis and planned treatment. Hang in there! -Tricia
CG to spouse, tonsillar SCC, T2N0M0, tonsillectomy 9/06, 35 rad tx finished 12/06, no chemo. Positive PET 3/07 in tonsillar fossa (residual tumor), surgery 4/2/07 composite resection tonsillar fossa and BOT w/forearm graft and right ND.
| | | | | Joined: Sep 2008 Posts: 5 Member | | OP Member
Joined: Sep 2008 Posts: 5 | My appointment is on the 8th so I'll keep everyone posted. Thank you for all your help and support. | | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Ryan,
Happy to see that you have an appointment now. Wednesday will be here before you know it.
You have my number so don't hesitate to call again...anytime.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Sep 2008 Posts: 5 Member | | OP Member
Joined: Sep 2008 Posts: 5 | Well went to the doctor today. He told me that it was a size 1 lesion, and that was good because it was caught early. He also felt my lymphnodes and didnt notice anything. I'm scheduled for a cat scan on the 21st just to make sure. The doctor also said it should all be removeable with surgery. He didnt think that would be any need for radiation or chemo as long as the cat scan comes back clear. If all goes well they want to do the surgery on the 28th. | | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | Congrats Ryan that is wonderful news for sure...I know what the waiting is like. my doctor was great did the same thing and he was right. They know what they are doing for sure. Best of luck with your cat scan and surgery...It will be easier than you think...
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Congrats on being treated by good Drs. I'll be watching for your posts. Darkeyes is right on. It won't be as bad as one would think.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Hi Ryan,
Sounds like your diagnosis is much like my initial diagnosis. I too had SCC on the left lateral tongue...small tumor, early Stage I. The doctors at MDACC felt mine could be treated solely with surgery and so I had a partial glossectomy and the tumor was removed. It was small enough and well defined so I was able to avoid the neck dissection. No chemo nor radiation. Be glad to answer any questions about the experience...sounds like you caught it early and you should come through the surgery with flying colors.
Susan
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hey Ryan,
I've missed the forum for a couple of days and was happy to find your good report upon getting on today.
Call if you have any questions and I look forward to seeing your reports here.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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