| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Nancy:
Its definitely a long road to walk before you are back to normal. Everyone reacts and heals differently. I was barely able to eat when my chemo and rad started due to having 2 open sores of cancer in my mouth. Ask your doc for magic mouthwash and use it to help ease the pain or the mouth sores. There are many variations of this, mine was malox, lidocain and benadryl. This will help you by making it easier to eat. Just keep swallowing as much as you can thru out the tx. Keep your calories up to 2000-3000 daily and water minimum at 48oz. Of course the more water and calories the better it will be for you. Good luck with tx.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Nancy,
Quick reply is what we all use. Just start typing in the box and when you're finished hit the Submit button. Anytime before that you can correct your post by backing up, retyping, etc.
Switch to Full Screen Reply is the same thing except it allows you to be a little more creative with your posts.
If you want to abandon the post you're in before you hit Submit just hit the back arrow at the top of your computer screen.
When you hit the Submit you will be taken back to the post where your's will now be the last one. Read it and if you need to make a correction or wish to add more thoughts just hit the Edit button and correct away. I always Unclick the Mark as Edited? just so no one knows that I had to correct myself. Gotta keep my image up you know. LOl
Keep on playing around and I'm sure you'll get the hang of it. This site is really user friendly.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Sep 2008 Posts: 250 | Nancy, I use the "preview reply" button next to the submit button every time. Sometimes, when I read my post in the preview box, it doesn't make sense even to ME. Then I go back and try to fix it. Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I can read the preview box and I still mess up. LOL I must read too fast as well as try to type.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Just put that little line that appears when you click with your mouse behind whatever you want to delete and hit the backspace key. It will back up as far as you want it to.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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