#8116 08-21-2006 03:29 PM | Joined: Aug 2006 Posts: 167 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Aug 2006 Posts: 167 | Hi my Dad is noticing his hair is starting to fall out. It's been 11 weeks since he 'finished' treatment (35 rads and 3 chemos). It didn't fall out during treatment but he's been noticing it for a few weeks now. He was wondering if anyone else has experienced this?
Thanks in advance. LisaB
My Dad (Sam) at age 69 dx SCC Base of Tongue T1N2C Well-Diff - March 2006.
35 IMRT rads & 3 Cisplatin chemos - Apr-June/06. Nodes shrunk 50% Dr's suggest ND. Negative PET - he declined ND.
March/07 Had Bilateral ND. No Cancer!! Doing Well!
| | |
#8117 08-21-2006 04:25 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Lisa, there's 2 kinds of hair loss. One is from the chemo and that hair will grow back. The second is from the follicles directly in the radiation field. The follicles actually die and fall out. The hair will not regrow there except fot a few stragglers here and there. I never have to shave my neck and that's 360 degree's. My hair loss wasn't symetrical either. Like 1/2 of my moustache fell out - but it grew back. Neither my wife or I can remember when this all started but I can remember smelling like a toxic waste factory from the Cisplatin for several weeks post Tx.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | |
#8118 08-22-2006 01:08 AM | Joined: Aug 2006 Posts: 167 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Aug 2006 Posts: 167 | Thanks; well his hair on his head is falling out and it didn't during treatment.
Thanks Lisa
My Dad (Sam) at age 69 dx SCC Base of Tongue T1N2C Well-Diff - March 2006.
35 IMRT rads & 3 Cisplatin chemos - Apr-June/06. Nodes shrunk 50% Dr's suggest ND. Negative PET - he declined ND.
March/07 Had Bilateral ND. No Cancer!! Doing Well!
| | |
#8119 08-22-2006 08:52 AM | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 66 | I think that in most of the patients I have talked to, the loss of hair is an emotionally disturbing by-product of treatments. Whether chemo induced and returning, or radiation induced and gone forever, it is a drag no matter how you slice it, and hurts self-image. I recommend, and have heard this from many others, to buzz cut the hair down to and 1/8th or 1/4 of an inch right from the get go. Loosing hair in clumps is disturbing, seeing it in the drain, etc. and having a patch work of bald areas and hair in others in some random pattern isn
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#8120 08-22-2006 10:30 AM | Joined: Aug 2006 Posts: 167 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Aug 2006 Posts: 167 | Well as long as it just comes with treatment and not anything to worry about; that's more what is bothering my Dad.
Thanks Lisa
My Dad (Sam) at age 69 dx SCC Base of Tongue T1N2C Well-Diff - March 2006.
35 IMRT rads & 3 Cisplatin chemos - Apr-June/06. Nodes shrunk 50% Dr's suggest ND. Negative PET - he declined ND.
March/07 Had Bilateral ND. No Cancer!! Doing Well!
| | |
#8121 08-22-2006 03:11 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I was shaving my head long before I was Dx'd with cancer and a lot of women find it edgey and attractive. In fact I met my wife after I shaved my head and she's pretty easy on the eyes. Hair on men is overblown and those fake and spray can hair BS makes me want to puke. Brian's right - get a buzz cut. My barber told me many years ago that once men shave their heads they rearely go back. We set ourselves up with wierd standards of what is considered attractive. It's really an industry rather than a cultural thing anyway.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | |
#8122 08-22-2006 03:40 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Yul Brenner- YUM YUM-  Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
| | |
#8123 08-23-2006 01:45 AM | Joined: Aug 2006 Posts: 167 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Aug 2006 Posts: 167 | Well during treatment my Dad's nice silver hair was growing in black (his natural colour) now his face hair is black. His hair didn't fall out (not that we noticed anyhow) but 'now' after treatment it is starting to. The doctors say the chemo is out of the body; so maybe it's the rad that is still working? Any comments?
My Dad (Sam) at age 69 dx SCC Base of Tongue T1N2C Well-Diff - March 2006.
35 IMRT rads & 3 Cisplatin chemos - Apr-June/06. Nodes shrunk 50% Dr's suggest ND. Negative PET - he declined ND.
March/07 Had Bilateral ND. No Cancer!! Doing Well!
| | |
#8124 08-24-2006 09:06 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Strangley enough it seemed that only the dark hairs in my beard fell out - to the point that the rad techs commented on it, but they grew back with avengence. Many people think I look better and healthier now then before treatment. I feel pretty good these days. There is definitely life after after treatment and it doesn't have to be a sh*t sandwich!
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | |
#8125 08-24-2006 01:12 PM | Joined: Apr 2006 Posts: 5 Member | Member Joined: Apr 2006 Posts: 5 | My seventy year old hubby had a gorgeous full, white beard before his treatments. He's left with a goatee....dark brown, like when I met him 35 years ago! | | |
#8126 10-08-2006 02:42 PM | Joined: Jul 2006 Posts: 47 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jul 2006 Posts: 47 | It's been about 8 weeks since Tom's last Cisplatin and he's just now losing hair from his head and body (most facial hair has been long gone from radiation). Does it always take so long?
We expected it much sooner and thought we were out of the woods when he didn't lose it within a couple of weeks of the last treatment. He's not upset...he wears it very short (#3 all over) and thinks he'll look "like a bad-a** with a shaved head and big scar on my neck." A pleasant surprise: his scar is barely noticeable now that his skin has healed and renewed after radiation.
Joyce
CG to Tom dx SCC 5/06; right neck lymph nodes removed, dx right tonsil and tonsillectomy 6/06; rad and chemo started 7/06; treatment COMPLETED 9/06 33x rad; Erbitux (8x); Cisplatin (2);
| | |
#8127 10-09-2006 04:02 AM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2002 Posts: 458 | For some reason both times after Chemo/Rad I had scalp problems, showed up about a month or two after treatment ended. Used a anti-psoriasis shampoo (can't remember the name) for a few weeks and it went away. Only hair loss was from radiation field, and it eventually grew back. That was the start of my wearing my hair very short a la military buzz cut, but seems that's the style these days anyway.
And Gary, if you compare my DL photos from before and after treatment, folks think I look 10 years younger now. Go figure!
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
| | |
#8128 10-09-2006 01:11 PM | Joined: Aug 2006 Posts: 167 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Aug 2006 Posts: 167 | Hey Joyce it's been 4 months since my Dad finished his treatment and his hair is still thinning. It hasn't come out in clumps; it just thins, and not really all that much; but more so after treatment then during treatment.
JetAgeHobo, intersting about your scalp; my Dad has a large scab on his scalp (right where it's thinning).
My Dad (Sam) at age 69 dx SCC Base of Tongue T1N2C Well-Diff - March 2006.
35 IMRT rads & 3 Cisplatin chemos - Apr-June/06. Nodes shrunk 50% Dr's suggest ND. Negative PET - he declined ND.
March/07 Had Bilateral ND. No Cancer!! Doing Well!
| | |
#8129 10-09-2006 03:31 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2002 Posts: 1,140 Likes: 1 | LisaB, I had cisplatin and it did not affect my hair. I am wondering if your dad has had his thyroid checked, as thinning hair is one symptom of hypothyroidism. Others are being cold, being tired, and sometimes muddle minded. Persons who have had radiation are more likely to have this problem. A simple blood test is all that is necessary to see if this is what ails him. | | |
#8130 10-10-2006 02:13 AM | Joined: Aug 2006 Posts: 167 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Aug 2006 Posts: 167 | Thanks Joanna, I'll let him know that.
My Dad (Sam) at age 69 dx SCC Base of Tongue T1N2C Well-Diff - March 2006.
35 IMRT rads & 3 Cisplatin chemos - Apr-June/06. Nodes shrunk 50% Dr's suggest ND. Negative PET - he declined ND.
March/07 Had Bilateral ND. No Cancer!! Doing Well!
| | |
#8131 10-10-2006 04:39 AM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2002 Posts: 642 | This leads to a question I had on another thread that got overlooked. When I had my chemo/radiation four years ago at MDACC the usual protocol seemed to be concurrent small doses of chemo with the radiation. I had about 4 one half day chemo treatments and lost no hair and felt little or no side effects. I met a man recently with a similar diagnosis to mine who is also being treated at MDACC and he has started a long series of full day chemo sessions that will go on for several weeks before radiation starts.
For Gary and the scientifically informed here. What is up with that? Have the protocols changed? Are larger doses of chemo now being routinely used for H&N cancer?
Thanks, Danny G.
Stage IV Base of Tongue SCC Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
| | |
#8132 10-11-2006 06:38 AM | Joined: Aug 2006 Posts: 167 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Aug 2006 Posts: 167 | Joanna; is it not normal for hair to fall out with cisplatin? and this far after treatment as well?
Thanks
My Dad (Sam) at age 69 dx SCC Base of Tongue T1N2C Well-Diff - March 2006.
35 IMRT rads & 3 Cisplatin chemos - Apr-June/06. Nodes shrunk 50% Dr's suggest ND. Negative PET - he declined ND.
March/07 Had Bilateral ND. No Cancer!! Doing Well!
| | |
#8133 10-11-2006 01:30 PM | Joined: Jul 2004 Posts: 188 Likes: 1 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jul 2004 Posts: 188 Likes: 1 | Lisa, A simple blood test can either rule out or confirm hypothyroidism. It is a relatively common side effect of radiation which is easily controlled with synthroid. My own thyroid failed sometime around 6 months after treatment, and I have been on the synthroid for two years. The blood work is part of my normal tests every six months now, and the prescription is one of the cheapest I have, at ~$11.00 for 90 days worth.
If this is the cause of his hair loss, then this will help clear it up along with several other annoying side effects that just generally make you feel like crap.
Good Health,
Chuck
SCC Stage IV right tonsil T3N3M0. Dx 08/03. Clinical Trial:8 weeks Taxol, Carboplatin then Hydrea, 5FU, IMRT x's 48, SND, Iressa x 2yrs. Now 20 years out and thriving. Dealing with a Prostate cancer diagnosis now. Add a Bladder cancer diagnosis to all the fun. It's always something "Adversity doesn't build character, it reveals it." | | |
#8134 10-11-2006 01:46 PM | Joined: Jul 2006 Posts: 47 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jul 2006 Posts: 47 | Thanks to all who mentioned hypothyroidism. We are going to call and schedule a blood test tomorrow. None of our docs mentioned this to us.
LisaB, our MO told Tom that he would lose hair from the Cisplatin. What puzzled us is that he didn't, until now. Wishing you and your dad all the best--he's lucky to have you at bat for him!
Joyce
CG to Tom dx SCC 5/06; right neck lymph nodes removed, dx right tonsil and tonsillectomy 6/06; rad and chemo started 7/06; treatment COMPLETED 9/06 33x rad; Erbitux (8x); Cisplatin (2);
| | |
#8135 10-11-2006 02:10 PM | Joined: Aug 2006 Posts: 167 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Aug 2006 Posts: 167 | Thanks for the info. Ok he has a follow up in mid Nov with the RO and for bloodwork; so I'll make sure they check it.
Thanks Joyce! My Dad is great and does soooo much for us all. I'll do anything to help him.
Take care!
My Dad (Sam) at age 69 dx SCC Base of Tongue T1N2C Well-Diff - March 2006.
35 IMRT rads & 3 Cisplatin chemos - Apr-June/06. Nodes shrunk 50% Dr's suggest ND. Negative PET - he declined ND.
March/07 Had Bilateral ND. No Cancer!! Doing Well!
| | |
#8136 10-12-2006 05:56 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hi Lisa, Hopefully the RO did a FULL thyroid panel before he started radiation. You now need a new FULL thyroid panel done so you can compare his TSH level to what it was before he had radiation. The 'in range' levels for thyroid panels are fairly wide so you can still be in range and suffer from some side effects. I try to keep my TSH as close to what it was before radiation as possible. I get tested every three months.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | |
#8137 10-12-2006 11:17 AM | Joined: Aug 2006 Posts: 167 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Aug 2006 Posts: 167 | Doesn't look like TSH has been tested (I have a copy of all bloodwork). He said his hair is not thinning anymore.
Thanks
My Dad (Sam) at age 69 dx SCC Base of Tongue T1N2C Well-Diff - March 2006.
35 IMRT rads & 3 Cisplatin chemos - Apr-June/06. Nodes shrunk 50% Dr's suggest ND. Negative PET - he declined ND.
March/07 Had Bilateral ND. No Cancer!! Doing Well!
| | |
#8138 10-16-2006 08:05 AM | Joined: Jun 2006 Posts: 82 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jun 2006 Posts: 82 | My hair is still thinning 9 weeks post treatment. I don't know if this is from the chemo the radiation the baby (7 months) or a combo of all three. Luckily I started out with a thick head of hair, but it is still messy.
DX on 05/01/06 with SCC of right tongue. 05/11/06 surgery-tumor 1.2cm & 4 cm clear margins & parital glos. & neck dissection with removal of 34 nodes/1 positive at 4mm)T1N1MO 35 IGRT & 3 cycles of chemo (1 cisplatin & 2 carbo-complete on 8/9/06.
| | |
#8139 10-16-2006 11:07 AM | Joined: Sep 2006 Posts: 24 Member | Member Joined: Sep 2006 Posts: 24 | Lisa I have 2 bold patches at the back of my head and I haven | | |
Forums23 Topics18,248 Posts197,137 Members13,320 | Most Online1,788 Jan 23rd, 2025 | | | |