| | Joined: Mar 2002 Posts: 4,918 Likes: 72 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 72 | It wasn't taken as a criticism. And when NJ gets up and running as an OCF chapter, I hope you will volunteer to talk to new patients, you will be quite an asset.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Well, one week to go before my cancer walk. Very nervous but everything is coming together.
Lots to be done in the next few days, confirming food, rentals, getting paperwork done, etc. But I know I will be making a difference and that is the best part. No matter the outcome I have made oral cancer awareness known in my hometown, a cancer noone knows about. It is a beginning.
I have received many calls from oral cancer patients, survivors, family members thanking me for starting this and I cannot begin to tell you the good feeling I have. Talking to them and letting them know there is a voice out there, OCF, who can help them deal with this disease, is so rewarding.
Anyone interested in doing the same, you can always contact me for more information.
I will let you all know how it turns out.
Again, it is Saturday, September 27th, Andover, NJ.
WE CAN MAKE A DIFFERENCE
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 |
Susan:
I know your walk is Sat. the 27th. What time and exactly where in Andover is this going to be held?
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2002 Posts: 4,918 Likes: 72 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 72 |
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | How long is the walk? I can't find that info.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 72 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 72 | Most of the walks we plan are about 4-5 miles (you can easily walk 3 MPH), but the reality of it all is that you can quit when you want and head back instead of making the loop. Walks serve several purposes, it gets a group of people with a common goal together, and people that see a large group of others doing something ask questions, want to know what it is all about, why etc., and though that people get the chance to learn about (in this case) oral cancer, perhaps for the first time they have ever heard of it. We have had patients come to events that don't/can't make the walk, but in the end it is more about being part of it all for a good cause than the length of any walk.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | It's a wonderful thing. I'm going to try and make it. Maybe I'll drag my husband along even though "walking" is not his thing-I have to drag him around the block!
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Christine,
Registration begins at 9:00 am and the walk at 11:00. Screenings are being done during that time. The exact address is 350 Andover Sparta Road, Andover, Nj (Perona Farms) There is a renovated barn off to the side, since it will probably rain everything will be inside. I ws going to have tents set up but it looks like it will be alittle wet. So if you come bring an umbrella!! The walk is about 2 miles. It really is a pretty walk, around lakes, even if it does rain! HOpe to see you there.!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Susan,
In the last several years, at the NYC Walk, I was able to meet some OCF members, who had only been screen names to each other. It was really great for us to get together.
Since you know who might be coming, perhaps you can come up with some way for those of us that will be there, to meet. We could all supply you with our cell numbers if that would help.
I'm still planning on being there and praying for little or no rain.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Thanks Jerry, that is so great of you to try to come, even in the rain. I check the weather every 1/2 hour, hoping for a change, nada.
The venue is a barn and since we will all be in there and not spread out, it should be easy to find each other. I think its a great idea about cell numbers as well, if you would like to send your number in a PM, I will try to get others as well,
Truly looking forward to meeting you.
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
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